Responsible data sharing: Identifying and remedying possible re-identification of human participants.

IF 2.9 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Kirsten N Morehouse, Benedek Kurdi, Brian A Nosek
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引用次数: 0

Abstract

Open data collected from research participants creates a tension between scholarly values of transparency and sharing, on the one hand, and privacy and security, on the other hand. A common solution is to make data sets anonymous by removing personally identifying information (e.g., names or worker IDs) before sharing. However, ostensibly anonymized data sets may be at risk of re-identification if they include demographic information. In the present article, we provide researchers with broadly applicable guidance and tangible tools so that they can engage in open science practices without jeopardizing participants' privacy. Specifically, we (a) review current privacy standards, (b) describe computer science data protection frameworks and their adaptability to the social sciences, (c) provide practical guidance for assessing and addressing re-identification risk, (d) introduce two open-source algorithms developed for psychological scientists-MinBlur and MinBlurLite-to increase privacy while maintaining the integrity of open data, and (e) highlight aspects of ethical data sharing that require further attention. Ultimately, the risk of re-identification should not dissuade engagement with open science practices. Instead, technical innovations should be developed and harnessed so that science can be as open as possible to promote transparency and sharing and as closed as necessary to maintain privacy and security. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

负责任的数据共享:识别和纠正可能存在的对人类参与者身份的重新识别。
从研究参与者那里收集到的开放数据在学术价值--透明度和共享--与隐私和安全之间产生了矛盾。一种常见的解决方案是在共享前删除个人身份信息(如姓名或工作者 ID),从而使数据集匿名。然而,表面上匿名的数据集如果包含人口统计信息,可能会有被重新识别的风险。在本文中,我们为研究人员提供了广泛适用的指导和切实可行的工具,使他们能够在不损害参与者隐私的情况下参与开放科学实践。具体来说,我们(a)回顾了当前的隐私标准,(b)介绍了计算机科学数据保护框架及其对社会科学的适应性,(c)提供了评估和解决重新识别风险的实用指南,(d)介绍了为心理科学家开发的两种开源算法--MinBlur 和 MinBlurLite--以提高隐私性,同时保持开放数据的完整性,(e)强调了需要进一步关注的道德数据共享方面。归根结底,重新识别的风险不应该阻止人们参与开放科学实践。相反,应开发和利用技术创新,使科学尽可能开放,以促进透明度和共享,并在必要时封闭,以维护隐私和安全。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
ACS Chemical Health & Safety
ACS Chemical Health & Safety PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
3.10
自引率
20.00%
发文量
63
期刊介绍: The Journal of Chemical Health and Safety focuses on news, information, and ideas relating to issues and advances in chemical health and safety. The Journal of Chemical Health and Safety covers up-to-the minute, in-depth views of safety issues ranging from OSHA and EPA regulations to the safe handling of hazardous waste, from the latest innovations in effective chemical hygiene practices to the courts'' most recent rulings on safety-related lawsuits. The Journal of Chemical Health and Safety presents real-world information that health, safety and environmental professionals and others responsible for the safety of their workplaces can put to use right away, identifying potential and developing safety concerns before they do real harm.
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