“WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early-stage dementia

IF 3.6 3区 医学 Q2 GERIATRICS & GERONTOLOGY
Emily L. Mroz, Anna E. Schwartz, Sarah Valeika, Gabriele Oettingen, Richard Marottoli, Daniel David, Ashley Hagaman, Donna Fedus, Joan K. Monin
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Abstract

Objectives

As symptoms emerge and worsen in people living with dementia, their spouses can benefit from behavioral interventions to support their adjustment as a care partner. The Wish Outcome Obstacle Plan (WOOP) intervention improves the well-being of spouses of people living with dementia early in the disease course, but intervention mechanisms and opportunities for improvement are unclear. The present study gave voice to spouses who participated in a trial of WOOP, describing how WOOP was incorporated into their lives and how it could be improved for future implementation.

Method

For this qualitative study, we conducted longitudinal semi-structured interviews among 21 spouses of people living with dementia (three interviews over three months; 63 interviews total). Codebook thematic analysis was performed.

Results

Three meta-themes were derived: (1) assessing baseline strengths and limitations of WOOP, (2) learning from experience, and (3) fine-tuning and sustaining WOOP. Participants described how WOOP addressed their interpersonal and emotional stressors, their responses to behaviors of the person living with dementia, and their relationship quality. Considerations for future intervention delivery (e.g., solo vs. in group settings) and instructions (e.g., encouraging writing vs. thinking through the four steps of WOOP) were identified as areas of improvement.

Conclusions

WOOP was described as a practical, feasible, and desirable intervention for spouses at the early stages of their partner's dementia. Participants made WOOP easier to incorporate in their everyday lives by adapting the design into a mental exercise that they used as needed. Suggestions from participants specified how to make the everyday use of WOOP more feasible, sustainable, and applicable in a variety of contexts.

Trial Registration

ClinicalTrials.gov HIC 2000021852.

"WOOP是我的避风港针对早期痴呆症患者配偶的 "愿望结果障碍计划"(WOOP)干预的可行性和可接受性定性研究
目标 随着痴呆症患者症状的出现和恶化,他们的配偶可以从行为干预中受益,以支持他们作为护理伙伴的调整。愿望结果障碍计划(WOOP)干预措施可在痴呆症患者病程早期改善其配偶的福祉,但干预机制和改善机会尚不明确。本研究倾听了参与 WOOP 试验的配偶的心声,描述了 WOOP 如何融入他们的生活,以及如何在今后的实施中加以改进。 方法 在这项定性研究中,我们对 21 名痴呆症患者的配偶进行了纵向半结构式访谈(三个月内进行三次访谈,共 63 次访谈)。我们进行了编码本主题分析。 结果 得出了三个元主题:(1) 评估 WOOP 的基线优势和局限性,(2) 从经验中学习,以及 (3) 微调和维持 WOOP。参与者描述了 WOOP 如何解决他们的人际关系和情绪压力、他们对痴呆症患者行为的反应以及他们的关系质量。他们还指出了未来干预实施的注意事项(例如,单独实施与在小组环境中实施)和指导(例如,鼓励书写与通过 WOOP 的四个步骤进行思考),这些都是需要改进的地方。 结论 WOOP 被认为是配偶在其伴侣痴呆症早期阶段的一种实用、可行和理想的干预措施。参与者将 WOOP 的设计改编成了他们根据需要使用的心理练习,从而使 WOOP 更容易融入他们的日常生活。参与者提出的建议具体说明了如何使 WOOP 的日常使用更加可行、可持续,并适用于各种情况。 试验注册 ClinicalTrials.gov HIC 2000021852。
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来源期刊
CiteScore
6.10
自引率
2.50%
发文量
168
审稿时长
4-8 weeks
期刊介绍: The rapidly increasing world population of aged people has led to a growing need to focus attention on the problems of mental disorder in late life. The aim of the Journal is to communicate the results of original research in the causes, treatment and care of all forms of mental disorder which affect the elderly. The Journal is of interest to psychiatrists, psychologists, social scientists, nurses and others engaged in therapeutic professions, together with general neurobiological researchers. The Journal provides an international perspective on the important issue of geriatric psychiatry, and contributions are published from countries throughout the world. Topics covered include epidemiology of mental disorders in old age, clinical aetiological research, post-mortem pathological and neurochemical studies, treatment trials and evaluation of geriatric psychiatry services.
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