Impact of SCOPE Program on Health-Related Quality of Life and Health Status of Children With Thalassemia: A Quasi-Experimental Study.

K. K, Padmaja A, Basheerahamed J. Sikandar
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Abstract

Background: Iron chelation, blood transfusions, and complication management are typical hospital requirements for children with beta-thalassemia major. This affects their health-related quality of life (HRQoL). The purpose of this study was to evaluate how the Supportive and Coping strategies, Ongoing Assessment, Prevention of Complications, and Empowerment (SCOPE) Program impacted the HRQoL and overall health of children with thalassemia. Method: The study employed a quasi-experimental pretest-posttest control group with a sequential follow-up design. A nonprobability purposive sampling technique was used to include 80 children with beta-thalassemia major in the sample, ranging in age from 6 to 18. Data were gathered using a Demographic Profile, PedsQLTM Version 4.0, and a Clinical Profile. The children in the intervention group received the SCOPE Program over the course of 6 months. The data collection included a pretest and a posttest with four follow-up evaluations. Results: During the pretest, children with thalassemia had a very low HRQoL. However, the final assessment after the intervention showed a significant difference in the mean scores between the two groups in the areas of physical functioning (p = .001), emotional functioning (p = .0001), social functioning (p = .001), and school functioning (p = .001). Growth indicators also demonstrated a notable improvement in the intervention group of children. Discussion: The SCOPE Program may be a thorough and efficient intervention for enhancing the general health of children with thalassemia. It can be used as a cooperative, well-organized, family-focused care strategy. Further study with a larger sample size is suggested.
SCOPE 计划对地中海贫血患儿健康相关生活质量和健康状况的影响:一项准实验研究
背景:螯合铁、输血和并发症处理是重型地中海贫血患儿住院治疗的典型要求。这影响了他们与健康相关的生活质量(HRQoL)。本研究旨在评估支持和应对策略、持续评估、并发症预防和赋权(SCOPE)计划如何影响地中海贫血患儿的 HRQoL 和整体健康。研究方法该研究采用了准实验性的前测-后测对照组和连续随访设计。采用非概率目的性抽样技术,将 80 名年龄在 6 至 18 岁之间的重型地中海贫血患儿纳入样本。收集数据时使用了人口统计学档案、PedsQLTM 4.0 版和临床档案。干预组的儿童接受了为期 6 个月的 SCOPE 计划。数据收集包括一次前测和一次后测,以及四次跟踪评估。结果:在前测期间,地中海贫血患儿的 HRQoL 非常低。然而,干预后的最终评估显示,两组儿童在身体功能(p = .001)、情绪功能(p = .0001)、社会功能(p = .001)和学校功能(p = .001)方面的平均得分有显著差异。干预组儿童的成长指标也有明显改善。讨论SCOPE 计划可能是提高地中海贫血患儿总体健康水平的一种全面而有效的干预措施。它可以作为一种合作的、有组织的、以家庭为中心的护理策略。建议进一步开展样本量更大的研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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