Analysis of the Availability of Botulinum Toxin Type A in the Treatment of Children with Spastic Cerebral Palsy in Ukraine: A Survey of Doctors

Sabina Auhunas, Alex Wolf, O.V. Kyryk
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Abstract

In Ukraine, about 100,000 children suffer from nervous system disorders, with cerebral palsy (CP) being the leading cause of childhood disability. The European Registry of Children with Cerebral Palsy emphasizes the urgency of this problem. The objective: to analyze the supply, availability, and use of Botulinum toxin type A for the treatment of spastic cerebral palsy in children in Ukraine. Materials and methods. The study was conducted from October 2019 to December 2020, and it included monitoring the supply and availability of medicines, collecting quantitative and qualitative data from various sources, and interviewing 64 doctors. Results. This research highlights disparities in medicine supply satisfaction across Ukraine, with surveys of doctors indicating varying degrees of effectiveness in regions like Kyiv and Kharkiv compared to challenges in Zhytomyr and the Kyiv region. Key issues include surplus medicines, unethical distribution practices, and systemic inefficiencies such as lack of patient registries and insufficient funding. The findings suggest an urgent need for regulatory reforms, enhanced healthcare logistics, and infrastructure improvements to achieve equitable healthcare access nationwide. Conclusions. This study highlights significant challenges in delivering Botulinum toxin type A for spastic cerebral palsy in Ukraine, including systemic inefficiencies, funding shortages, and procurement delays. It emphasizes the need for policy reforms, improved communication, and digital information access to ensure equitable and efficient healthcare. Urgent improvements are advocated to address these issues and enhance patient care nationwide.
乌克兰治疗痉挛性脑瘫儿童的 A 型肉毒毒素可用性分析:医生调查
在乌克兰,约有 10 万名儿童患有神经系统疾病,其中脑瘫(CP)是导致儿童残疾的主要原因。欧洲脑瘫儿童登记处强调了这一问题的紧迫性。研究目的:分析乌克兰用于治疗痉挛性脑瘫儿童的A型肉毒杆菌毒素的供应、可用性和使用情况。研究于 2019 年 10 月至 2020 年 12 月进行,包括监测药品的供应和可用性,从各种渠道收集定量和定性数据,以及对 64 名医生进行访谈。这项研究凸显了乌克兰各地在药品供应满意度方面的差异,对医生的调查显示,基辅和哈尔科夫等地区的药品供应满意度各不相同,而日托米尔和基辅地区则面临挑战。主要问题包括药品过剩、不道德的分销行为以及系统效率低下,如缺乏患者登记和资金不足。研究结果表明,迫切需要进行监管改革、加强医疗物流和改善基础设施,以在全国范围内实现公平的医疗服务。本研究强调了乌克兰在提供 A 型肉毒杆菌毒素治疗痉挛性脑瘫方面面临的重大挑战,包括系统性低效、资金短缺和采购延迟。研究强调,需要进行政策改革、改善沟通和数字信息获取,以确保公平、高效的医疗保健。报告提倡采取紧急改进措施来解决这些问题,并在全国范围内加强对患者的护理。
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