Formal support and service needs of family caregivers of adults with intellectual and/or developmental disabilities in India

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-04-01 DOI:10.1111/jar.13235

Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh

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引用次数: 0

Abstract

Background

Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the professionals' understanding of their needs, the study proposed to conduct a caregiver needs assessment so that culturally-tailored programs are developed.

Method

A strengths-based mixed methods needs assessment was conducted with a convenience sample of 100 caregivers in Hyderabad, India. One hundred caregivers completed the survey and 15 caregivers participated in semi-structured interviews.

Results

Caregivers needed more and improved formal supports/services, particularly from the government. Caregivers faced systemic and attitudinal barriers, and personal impediments to accessing them. Needs differed by care recipients' intellectual disability level, gender, and intellectual disability related conditions.

Conclusions

Researchers, service providers and policymakers need to adopt innovative strategies to improve formal supports/services access.

查看原文本刊更多论文

印度智力和/或发育障碍成人家庭照顾者的正式支持和服务需求。

背景：尽管印度颁布了残疾人法律/政策，但研究表明，智力和/或发育障碍成人的照护者由于宣传障碍和缺乏相关意识而无法获得足够的正式支持/服务。为了解决照护者的支持需求与专业人员对其需求的理解之间的差异，该研究建议开展照护者需求评估，从而制定出符合文化特点的计划：方法：在印度海得拉巴对 100 名护理人员进行了以优势为基础的混合方法需求评估。100 名护理人员完成了调查，15 名护理人员参加了半结构化访谈：结果：护理者需要更多和更好的正规支持/服务，尤其是来自政府的支持/服务。照顾者在获得这些服务时面临系统性和态度上的障碍，以及个人障碍。照顾者的智障程度、性别和智障相关状况不同，其需求也不同：结论：研究人员、服务提供者和政策制定者需要采取创新策略，改善正规支持/服务的获取。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.