Mixed Methods for Research on Support Networks of People Experiencing Chronic Illness and Social Marginalization.

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE
Qualitative Health Research Pub Date : 2025-05-01 Epub Date: 2024-03-21 DOI:10.1177/10497323241235031
Tessa M Nápoles, Emily A Ekl, Jeff Nicklas, Laura Gómez-Pathak, Irene H Yen, Dani Carrillo, Kathleen de Leon, Nancy J Burke, Brea L Perry, Janet K Shim
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引用次数: 0

Abstract

Substantial research has focused on how social networks help individuals navigate the illness experience. Sociologists have begun to theorize beyond the binary of strong and weak social network ties (e.g., compartmental, elastic, and disposable ties), citing the social, economic, and health conditions that shape their formation. However, limited research has employed mixed social network methods, which we argue is especially critical for examining the "non-traditional" social support networks of marginalized individuals. We employ quantitative social network methods (i.e., the egocentric network approach) in addition to in-depth interviews and observations, with a novel tool for capturing network data about social groups, to surface these kinds of supportive relationships. Using the case of "nameless ties"-non-kin, non-provider ties who were unidentifiable by given name or were grouped by context or activity rather than individually distinguished-we show how mixed social network methods can illuminate supporters who are commonly overlooked when only using traditional social network analysis. We conclude with a proposal for mixed methods and group alter approaches to successfully observe liminal support ties that is ideal for research about individuals experiencing chronic disability, poverty, housing insecurity, and other forms of social marginalization.

研究慢性病患者和社会边缘化人群支持网络的混合方法》(Mixed Methods for Research on Support Networks of People Experienced Chronic Illness and Social Marginalization)。
大量的研究都集中在社会网络如何帮助个人摆脱疾病的折磨。社会学家已经开始从理论上超越社会网络纽带的强弱二元对立(例如,区隔纽带、弹性纽带和一次性纽带),并列举了影响其形成的社会、经济和健康状况。然而,采用混合社会网络方法的研究十分有限,我们认为这对于研究边缘化个人的 "非传统 "社会支持网络尤为重要。除了深入访谈和观察之外,我们还采用了定量社会网络方法(即自我中心网络方法),并使用一种新型工具来捕捉有关社会群体的网络数据,从而揭示这类支持关系。通过 "无名纽带"--无法识别姓名的非亲属、非提供者纽带,或根据背景或活动分组而非单独区分的纽带--的案例,我们展示了混合社会网络方法如何揭示仅使用传统社会网络分析时通常被忽视的支持者。最后,我们建议采用混合方法和群体改变方法来成功观察边缘性支持联系,这种方法非常适合对经历长期残疾、贫困、住房不安全和其他形式社会边缘化的个人进行研究。
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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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