Aroosa Nighat, Zaeema Ahmer, Mohammad Ovais, Fatima Bismah Athar, Lubna Ansari Baig
{"title":"Caregiver strain and its predictors among parents of autistic children: a cross-sectional study.","authors":"Aroosa Nighat, Zaeema Ahmer, Mohammad Ovais, Fatima Bismah Athar, Lubna Ansari Baig","doi":"10.2989/17280583.2023.2279637","DOIUrl":null,"url":null,"abstract":"<p><p><i>Objective:</i> This study estimates the frequency and predictors of caregiver strain (CGS) among parents of autistic children.<i>Methods:</i> Demographic details and CGS were collected through a validated tool from 403 parents of autistic children in Karachi, Pakistan. Regression modelling was performed to report associations between social, behavioural, and communication problems and socioeconomic predictors of CGS. Results were reported using adjusted beta-coefficients with 95% confidence intervals.<i>Results:</i> In total, 88.3% of the parents reported moderate to severe CGS. A high family income (β = -4.31, 95% CI -7.55, -0.11), and caregiver's higher level of education (β = -4.73, 95% CI -8.84, -0.61), along with care-recipient age group (β = -9.35, 95% CI -15.17, -3.52) significantly predicted lower CGS. Diagnosis of more than 5 years (β = 7.57, 95% CI 2.36, 12.79), tendency to self-harm (β = 10.75, 95% CI 6.62, 14.88), and social withdrawal in the care-recipient (β = 4.56, 95% CI 1.68, 7.44) were significantly associated with higher CGS.<i>Conclusion:</i> Parents of children on the autistic spectrum suffer from high CGS. There is a need to introduce tailored parenting interventions at the individual and community levels to help parents reduce the CGS, ultimately benefiting their child.</p>","PeriodicalId":45290,"journal":{"name":"Journal of Child and Adolescent Mental Health","volume":null,"pages":null},"PeriodicalIF":0.3000,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Child and Adolescent Mental Health","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.2989/17280583.2023.2279637","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/3/20 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
引用次数: 0
Abstract
Objective: This study estimates the frequency and predictors of caregiver strain (CGS) among parents of autistic children.Methods: Demographic details and CGS were collected through a validated tool from 403 parents of autistic children in Karachi, Pakistan. Regression modelling was performed to report associations between social, behavioural, and communication problems and socioeconomic predictors of CGS. Results were reported using adjusted beta-coefficients with 95% confidence intervals.Results: In total, 88.3% of the parents reported moderate to severe CGS. A high family income (β = -4.31, 95% CI -7.55, -0.11), and caregiver's higher level of education (β = -4.73, 95% CI -8.84, -0.61), along with care-recipient age group (β = -9.35, 95% CI -15.17, -3.52) significantly predicted lower CGS. Diagnosis of more than 5 years (β = 7.57, 95% CI 2.36, 12.79), tendency to self-harm (β = 10.75, 95% CI 6.62, 14.88), and social withdrawal in the care-recipient (β = 4.56, 95% CI 1.68, 7.44) were significantly associated with higher CGS.Conclusion: Parents of children on the autistic spectrum suffer from high CGS. There is a need to introduce tailored parenting interventions at the individual and community levels to help parents reduce the CGS, ultimately benefiting their child.
期刊介绍:
The Journal of Child & Adolescent Mental Health publishes papers that contribute to improving the mental health of children and adolescents, especially those in Africa. Papers from all disciplines are welcome. It covers subjects such as epidemiology, mental health prevention and promotion, psychotherapy, pharmacotherapy, policy and risk behaviour. The journal contains review articles, original research (including brief reports), clinical papers in a "Clinical perspectives" section and book reviews. The Journal is published in association with the South African Association for Child and Adolescent Psychiatry and Allied Professions (SAACAPAP).