Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study.

IF 1.2 Q2 MEDICINE, GENERAL & INTERNAL
Paula Riganti, María Victoria Ruiz Yanzi, Juan Victor Ariel Franco, Josefina Chiodi, Mónica Regueiro, Karin Silvana Kopitowski
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引用次数: 0

Abstract

Introduction: We aimed to develop a decision aid to support shared-decision making between physicians and women with average breast cancer risk when deciding whether to participate in breast cancer screening.

Methods: We included women at average risk of breast cancer and physicians involved in supporting the decision of breast cancer screening from an Academic Hospital in Buenos Aires, Argentina. We followed the International Patient Decision Aid Standards to develop our decision aid. Guided by a steering group and a multidisciplinary consultancy group including a patient advocate, we reviewed the evidence about breast cancer screening and previous decision aids, explored the patients' information needs on this topic from the patients' and physicians' perspective using semi-structured interviews, and we alpha-tested the prototype to determine its usability, comprehensibility and applicability.

Results: We developed the first prototype of a web-based decision aid to use during the clinical encounter with women aged 40 to 69 with average breast cancer risk. After a meeting with our consultancy group, we developed a second prototype that underwent alpha-testing. Physicians and patients agreed that the tool was clear, useful and applicable during a clinical encounter. We refined our final prototype according to their feedback.

Conclusion: We developed the first decision aid in our region and language on this topic, developed with end-users' input and informed by the best available evidence. We expect this decision aid to help women and physicians make shared decisions during the clinical encounter when talking about breast cancer screening.

用西班牙语为普通风险妇女开发乳腺癌筛查决策辅助工具:一项混合方法研究。
简介:我们旨在开发一种决策辅助工具,以支持医生和乳腺癌风险一般的妇女在决定是否参加乳腺癌筛查时共同决策:我们旨在开发一种决策辅助工具,以支持医生和乳腺癌风险一般的妇女在决定是否参加乳腺癌筛查时共同决策:我们将阿根廷布宜诺斯艾利斯一家学术医院中乳腺癌风险处于中等水平的妇女和参与支持乳腺癌筛查决策的医生纳入其中。我们按照《国际患者决策辅助标准》开发了决策辅助工具。在指导小组和包括一名患者权益倡导者在内的多学科顾问小组的指导下,我们查阅了有关乳腺癌筛查和以往决策辅助工具的证据,通过半结构化访谈从患者和医生的角度探讨了患者在这方面的信息需求,并对原型进行了阿尔法测试,以确定其可用性、可理解性和适用性:结果:我们开发了第一个基于网络的辅助决策原型,供 40 岁至 69 岁具有平均乳腺癌风险的妇女在临床就诊时使用。在与顾问小组会面后,我们开发了第二个原型,并进行了阿尔法测试。医生和患者一致认为,该工具清晰、实用,适用于临床会诊。我们根据他们的反馈意见完善了最终原型:我们开发了本地区第一款有关该主题的决策辅助工具,该工具的开发听取了最终用户的意见,并参考了现有的最佳证据。我们希望该辅助决策工具能够帮助妇女和医生在临床讨论乳腺癌筛查时共同做出决定。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Medwave
Medwave MEDICINE, GENERAL & INTERNAL-
CiteScore
2.60
自引率
8.30%
发文量
50
审稿时长
12 weeks
期刊介绍: Medwave is a peer-reviewed, biomedical and public health journal. Since its foundation in 2001 (Volume 1) it has always been an online only, open access publication that does not charge subscription or reader fees. Since January 2011 (Volume 11, Number 1), all articles are peer-reviewed. Without losing sight of the importance of evidence-based approach and methodological soundness, the journal accepts for publication articles that focus on providing updates for clinical practice, review and analysis articles on topics such as ethics, public health and health policy; clinical, social and economic health determinants; clinical and health research findings from all of the major disciplines of medicine, medical science and public health. The journal does not publish basic science manuscripts or experiments conducted on animals. Until March 2013, Medwave was publishing 11-12 numbers a year. Each issue would be posted on the homepage on day 1 of each month, except for Chile’s summer holiday when the issue would cover two months. Starting from April 2013, Medwave adopted the continuous mode of publication, which means that the copyedited accepted articles are posted on the journal’s homepage as they are ready. They are then collated in the respective issue and included in the Past Issues section.
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