Experience of French patients with olfactory disorders

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2024-05-01 DOI:10.1016/j.anorl.2024.02.009

L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen

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引用次数: 0

Abstract

Objectives

To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.

Material and methods

A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46 ± 15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.

Results

Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.

Conclusion

Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.

查看原文本刊更多论文

法国嗅觉障碍患者的经验。

目的评估嗅觉障碍患者在日常生活和医疗管理方面的经验，以及他们的期望和改进建议：2020年1月至2021年12月期间，对300名嗅觉障碍患者进行了横断面观察研究，其中女性222人，男性78人；平均年龄（46±15）岁。其中126人为耳鼻喉科就诊患者，174人为Anosmie.org患者协会会员。参与者填写了一份调查问卷；对自由文本进行了主题分析，并对各种定性变量进行了编码：结果：嗅觉障碍严重影响了健康、安全和生活质量。非 COVID-19 急性病因（非 COVID-19 病毒感染、颅脑外伤）造成的心理、社会、安全和营养后果的风险尤其高。几乎所有患者（94%）都对他们的医疗管理感到不满：28%的患者几乎没有得到任何解释，23%的患者认为他们的泌尿系统功能障碍完全被忽视，没有进行任何检查，也没有提出任何病因。患者最希望的是得到随访和陪伴：结论：尽管嗅觉障碍对健康和生活质量有重大影响，但仍被医疗界忽视。患者应接受耳鼻喉科的嗅觉评估，以确定诊断和预后。有必要进行全面的多学科管理，包括治疗教育、心理、社会和营养方面的随访。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.