Lessons From the Coronavirus Disease Experience: Research Participant and Staff Satisfaction With Remote Cognitive Evaluations.

IF 1.8 4区医学 Q3 CLINICAL NEUROLOGY

Alzheimer Disease & Associated Disorders Pub Date : 2024-01-01 Epub Date: 2024-02-12 DOI:10.1097/WAD.0000000000000605

Margaret Sewell, Judith Neugroschl, Carolyn W Zhu, Maria Loizos, Xiaoyi Zeng, Kelly Pun, Jonathan Greenberg, Nelly Velasco, Faye Sheppard, Carly Tocco, Kirsten Evans, Allison Ardolino, Caroline Meuser, Clara Li, Jonah Melnick, Hillel Grossman, Mary Sano

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引用次数: 0

Abstract

Objective: In New York City in 2020 the pandemic shut down in-person research. Icahn School of Medicine's Alzheimer's Disease Research Center transitioned longitudinal evaluations from in-person to telephone to enhance equity of access. We assessed diverse research participants' and clinical research coordinators' (CRC) satisfaction with remote evaluation and examined sociodemographic, cognitive, and behavioral factors that might impact satisfaction.

Methods: Data collected: 241 participants with Clinical Dementia Rating (CDR) = 0/0.5 (3/2020 to 6/2021). A Telehealth Satisfaction Questionnaire for CRCs and participants was administered at the end of remote evaluations. We compared Telehealth Satisfaction Questionnaire items by CDR and Geriatric Depression Scale.

Results: Participants' mean age was 78.4, 61.4% were females, 16.2% were Hispanic, 17.1% Asian, 15.8% were non-Hispanic black, and 72.6% CDR = 0. Participant satisfaction was high [14.1 ± 1.4 (out of 15)] but was lower among those with depression. CRC satisfaction was high [16.9 ± 1.8 (out of 18)] but was lower concerning the ability to explain the test battery and interact with participants with CDR = 0.5.

Conclusion: Telephone research assessments provide flexibility in a hybrid model. They offer equitable access to research participation for those who do not use computer technology and may promote the retention of diverse elderly research participants.

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冠状病毒疾病的经验教训：研究参与者和工作人员对远程认知评估的满意度。

目标：2020 年，纽约市因大流行病而停止了面对面的研究。伊坎医学院阿尔茨海默病研究中心将纵向评估从面对面过渡到电话评估，以提高评估的公平性。我们评估了不同研究参与者和临床研究协调员（CRC）对远程评估的满意度，并研究了可能影响满意度的社会人口、认知和行为因素：收集的数据：241 名临床痴呆评级（CDR）= 0/0.5 的参与者（2020 年 3 月至 2021 年 6 月）。在远程评估结束时，对 CRC 和参与者进行了远程保健满意度问卷调查。我们按 CDR 和老年抑郁量表比较了远程保健满意度问卷的项目：参与者的平均年龄为 78.4 岁，61.4% 为女性，16.2% 为西班牙裔，17.1% 为亚裔，15.8% 为非西班牙裔黑人，72.6% 的 CDR = 0。参与者的满意度较高 [14.1 ± 1.4（满分 15 分）]，但抑郁症患者的满意度较低。CRC 的满意度较高[16.9 ± 1.8（18 人中）]，但在解释测试电池和与参与者互动的能力方面较低，CDR = 0.5：结论：电话研究评估是一种灵活的混合模式。结论：电话研究评估在混合模式中提供了灵活性，为不会使用计算机技术的人提供了公平参与研究的机会，并可促进留住不同的老年研究参与者。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Alzheimer Disease & Associated Disorders 医学-病理学

CiteScore

3.10

自引率

4.80%

发文量

期刊介绍： Alzheimer Disease & Associated Disorders is a peer-reviewed, multidisciplinary journal directed to an audience of clinicians and researchers, with primary emphasis on Alzheimer disease and associated disorders. The journal publishes original articles emphasizing research in humans including epidemiologic studies, clinical trials and experimental studies, studies of diagnosis and biomarkers, as well as research on the health of persons with dementia and their caregivers. The scientific portion of the journal is augmented by reviews of the current literature, concepts, conjectures, and hypotheses in dementia, brief reports, and letters to the editor.