Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)

IF 1.8 Q3 HEALTH CARE SCIENCES & SERVICES

Patient Related Outcome Measures Pub Date : 2024-02-01 DOI:10.2147/prom.s438892

Susan Mathias, Laurie Burke, Hilary Colwell, George Mensing, Will Savage, H. Naik

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用于评估促红细胞生成原卟啉症患者疾病严重程度和变化的新型患者报告结果测量方法的开发和内容验证：促红细胞生成素卟啉症影响问卷 (EPIQ)

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Patient Related Outcome Measures HEALTH CARE SCIENCES & SERVICES-

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4.80%

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16 weeks