"I don't have a choice but to keep getting up and doing the things that protect her": The informal caregiver's adaptation to the cancer diagnosis.

IF 1.5 4区医学 Q4 PSYCHOLOGY, SOCIAL

Journal of Psychosocial Oncology Pub Date : 2024-01-01 Epub Date: 2024-02-11 DOI:10.1080/07347332.2024.2310813

Marcia A Winter, Rebecca Hoppe, Tara A Albrecht

{"title":"\"I don't have a choice but to keep getting up and doing the things that protect her\": The informal caregiver's adaptation to the cancer diagnosis.","authors":"Marcia A Winter, Rebecca Hoppe, Tara A Albrecht","doi":"10.1080/07347332.2024.2310813","DOIUrl":null,"url":null,"abstract":"Purpose: Patients with hematologic malignancies (HM) typically rely on informal caregivers for support. Caregivers experience distress, poorer health, and lower quality of life. This study aimed to understand caregivers' experiences adapting to, and making meaning of, their family members' cancer diagnosis and treatment.Approach: Qualitative, constructivist approach.Participants: Caregivers (N = 28) of patients with HM within three months of diagnosis.Methods: A descriptive content analysis was used to analyze semi-structured interview responses and generate themes.Findings: Six themes emerged: power and control (powerlessness, empowerment, relinquishing control/accepting help), protection (gatekeeping, protective buffering), integrating the diagnosis, tolerating uncertainty, preparedness for the caregiver role, and maintaining positivity.Conclusions: Findings highlight challenges and resilience-promoting processes for caregivers adapting to HM diagnosis and treatment.Implications for psychosocial providers: Psychological and supportive care interventions can promote acceptance of the diagnosis, preparation for caregiving, navigation of power and control, and targeted coping strategies.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"622-635"},"PeriodicalIF":1.5000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Psychosocial Oncology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/07347332.2024.2310813","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/2/11 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"PSYCHOLOGY, SOCIAL","Score":null,"Total":0}

引用次数: 0

Abstract

Purpose: Patients with hematologic malignancies (HM) typically rely on informal caregivers for support. Caregivers experience distress, poorer health, and lower quality of life. This study aimed to understand caregivers' experiences adapting to, and making meaning of, their family members' cancer diagnosis and treatment.

Approach: Qualitative, constructivist approach.

Participants: Caregivers (N = 28) of patients with HM within three months of diagnosis.

Methods: A descriptive content analysis was used to analyze semi-structured interview responses and generate themes.

Findings: Six themes emerged: power and control (powerlessness, empowerment, relinquishing control/accepting help), protection (gatekeeping, protective buffering), integrating the diagnosis, tolerating uncertainty, preparedness for the caregiver role, and maintaining positivity.

Conclusions: Findings highlight challenges and resilience-promoting processes for caregivers adapting to HM diagnosis and treatment.

Implications for psychosocial providers: Psychological and supportive care interventions can promote acceptance of the diagnosis, preparation for caregiving, navigation of power and control, and targeted coping strategies.

查看原文本刊更多论文

"我别无选择，只能继续站起来做保护她的事情"：非正式照顾者对癌症诊断的适应。

目的：血液系统恶性肿瘤（HM）患者通常依赖非正式护理人员的支持。照顾者会感到痛苦、健康状况较差、生活质量较低。本研究旨在了解照顾者在适应其家庭成员的癌症诊断和治疗并从中获得意义方面的经验：方法：定性、建构主义方法：方法：采用定性、建构主义方法：方法：采用描述性内容分析法分析半结构化访谈的回答并生成主题：出现了六个主题：权力和控制（无力感、赋权、放弃控制/接受帮助）、保护（把关、保护性缓冲）、整合诊断、容忍不确定性、为照顾者角色做好准备以及保持积极性：研究结果强调了护理人员在适应 HM 诊断和治疗过程中面临的挑战和促进复原力的过程：心理和支持性护理干预可以促进对诊断的接受、为护理做好准备、引导权力和控制以及有针对性的应对策略。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Journal of Psychosocial Oncology PSYCHOLOGY, SOCIAL-

CiteScore

4.20

自引率

0.00%

发文量

期刊介绍： Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.