Promising Impact of Telenovela Intervention for Caregivers of Hospice Patients: A Pilot Study.

Dulce M Cruz-Oliver, Gabrielle E Milner, Kelsea Mensh, Marielle Bugayong, Marcela D Blinka, Nowella Durkin, Martha Abshire Saylor, Chakra Budhathoki, Debra Parker Oliver
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Abstract

Background: Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk of developing distress and anxiety. NOVELA is a four-chapter telenovela-style educational video to support topics related to hospice caregiving. Telehealth visits are scheduled in 4 weekly sessions consisting of a chapter and subsequent discussion with an interventionist. This feasibility pilot study tested NOVELA's effect to change HFCGs' outcomes, session and outcome measure completion (defined a priori as >70%).

Methods: This is a single-group pretest-posttest study of HFCGs of care recipients with PPS score >20% from 3 hospices in the U.S. Mid-Atlantic region. At baseline and at final posttest, participants completed a web-based survey assessing 3 outcomes: anxiety, self-efficacy, and satisfaction with intervention. Descriptive, t-test, and chi-square statistics were computed.

Results: Participants in our study (N = 59) were mainly collage educated, White, female, adult children of home-bound people with a non-cancer diagnosis. Outcomes changed in the expected direction (P > .05) with higher self-efficacy (Cohen's d = -.08 [95% CI -.4 to .2) and lower anxiety (Cohen's d = .2 [95% CI -.1 to .5]) scores from final to baseline, 86% of HFCGs were satisfied or very satisfied with NOVELA, session (33/59) and outcome measure (43/59) completion averaged 68%.

Conclusion: Encouraging trends in NOVELA's estimation of effect suggests that NOVELA may buffer stressful aspects of hospice caregiving. However, further refinement of NOVELA is needed. Supporting HFCGs through supportive educational interventions may reduce distress and anxiety with broad implications for quality improvement.

对临终关怀病人的护理人员进行电视连续剧干预的预期效果:试点研究。
背景:安宁疗护家庭照护者(HFCGs)为亲人的需要提供支持,但也有可能产生痛苦和焦虑。NOVELA 是一部四章的电视连续剧式教育视频,用于支持与安宁疗护相关的主题。远程医疗访问安排在每周的 4 个疗程中,包括一个章节以及随后与干预专家的讨论。这项可行性试点研究测试了 NOVELA 对改变 HFCGs 结果、疗程和结果测量完成度(先验定义为 >70%)的效果:这是一项针对美国大西洋中部地区 3 家临终关怀机构中 PPS 分数大于 20% 的护理对象的 HFCGs 的单组前测后测研究。在基线和最后的后测阶段,参与者完成了一项基于网络的调查,评估 3 项结果:焦虑、自我效能和对干预的满意度。我们计算了描述性统计、t 检验和卡方统计:我们研究的参与者(N = 59)主要是受过高等教育、白人、女性、非癌症患者的成年子女。结果朝着预期的方向变化(P > .05),自我效能感(Cohen's d = -.08 [95% CI -.4 to .2])和焦虑感(Cohen's d = .2 [95% CI -.1 to .5])得分从最终得分到基线得分均有所提高,86% 的 HFCGs 对 NOVELA 表示满意或非常满意,课程(33/59)和结果测量(43/59)的平均完成率为 68%:NOVELA 的效果评估趋势令人鼓舞,这表明 NOVELA 可以缓解临终关怀中的压力。然而,NOVELA 还需要进一步完善。通过支持性的教育干预来支持安宁疗护小组,可以减少痛苦和焦虑,对提高质量具有广泛的意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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