Birth defects surveillance: Working together to advance science

Abstract

Since 2000, the National Birth Defects Prevention Network (NBDPN), in collaboration with the US National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, has provided a special issue of Birth Defects Research focused on advancing the field of birth defects surveillance, epidemiology, and public health practice. The annual NBDPN special issue consists of contributed manuscripts using birth defects surveillance data for epidemiologic research or for improving birth defects surveillance methods. This year, our special issue includes updated national prevalence estimates for selected major birth defects, seven original research papers, and an invited editorial. Several of the accepted manuscripts highlight collaborative efforts between birth defects surveillance systems across the country: through the NBDPN, the National Birth Defects Prevention Study, and the Muscular Dystrophy Surveillance, Tracking, and Research Network. These studies offer examples of the power of pooling data and leveraging resources to conduct high-quality birth defects research.