Public health priorities for gastroschisis: Summary of a meeting sponsored by the Centers for Disease Control and Prevention and the March of Dimes

IF 1.6 4区医学 Q4 DEVELOPMENTAL BIOLOGY

Birth Defects Research Pub Date : 2024-01-19 DOI:10.1002/bdr2.2299

Naomi K. Tepper, Julia Chowdhury, Cynthia A. Moore, Martha M. Werler, Kathryn Mishkin, Jennita Reefhuis

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引用次数: 0

Abstract

Background

Gastroschisis has increased worldwide over several decades; however, there are significant gaps in understanding risk factors for development of the defect, particularly those that might be modifiable. Despite advances in survival, little is known about longer-term outcomes for affected individuals.

Methods

On April 27– and 28, 2023, the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) and March of Dimes sponsored a meeting entitled “Public Health Priorities for Gastroschisis”. The meeting goals were to review current knowledge on gastroschisis, discuss research gaps, and identify future priorities for public health surveillance, research, and action related to gastroschisis. Meeting participants encompassed a broad range of expertise and experience, including public health, clinical care of individuals with gastroschisis, affected individuals and families, and representatives from professional organizations and federal agencies.

Results

Several goals were identified for future public health surveillance and research, including focused theory-driven research on risk factors and increased study of longer-term effects of gastroschisis through improved surveillance. Certain public health actions were identified, that which could improve the care of affected individuals, including increased education of providers and enhanced resources for patients and families.

Conclusions

These efforts may lead to an improved understanding of pathogenesis, risk factors, and outcomes and to improved care throughout the lifespan.

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胃畸形的公共卫生优先事项：由美国疾病控制和预防中心与 March of Dimes 发起的会议摘要

背景在过去的几十年里，胃畸形在全球范围内呈上升趋势；然而，人们对这种缺陷发生的风险因素，尤其是那些可以改变的风险因素的了解还存在很大差距。尽管在存活率方面取得了进展，但对受影响个体的长期预后却知之甚少。方法 2023 年 4 月 27 日和 28 日，美国疾病控制和预防中心（CDC）的国家出生缺陷和发育障碍中心（National Center on Birth Defects and Developmental Disabilities）与 March of Dimes 联合主办了一次题为 "胃畸形的公共卫生优先事项 "的会议。会议的目的是回顾目前有关胃畸形的知识，讨论研究差距，并确定与胃畸形有关的公共卫生监测、研究和行动的未来优先事项。与会者具有广泛的专业知识和经验，包括公共卫生、胃裂患者的临床护理、受影响的个人和家庭以及专业组织和联邦机构的代表。会议结果确定了未来公共卫生监测和研究的几个目标，包括对风险因素进行重点理论研究，以及通过改进监测加强对胃螺裂长期影响的研究。还确定了一些公共卫生行动，这些行动可以改善对受影响个体的护理，包括加强对医疗服务提供者的教育以及为患者和家属提供更多资源。结论这些努力可能会加深对发病机制、风险因素和结果的了解，并改善整个生命周期的护理。

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来源期刊

Birth Defects Research Medicine-Embryology

CiteScore

3.60

自引率

9.50%

发文量

153

期刊介绍： The journal Birth Defects Research publishes original research and reviews in areas related to the etiology of adverse developmental and reproductive outcome. In particular the journal is devoted to the publication of original scientific research that contributes to the understanding of the biology of embryonic development and the prenatal causative factors and mechanisms leading to adverse pregnancy outcomes, namely structural and functional birth defects, pregnancy loss, postnatal functional defects in the human population, and to the identification of prenatal factors and biological mechanisms that reduce these risks. Adverse reproductive and developmental outcomes may have genetic, environmental, nutritional or epigenetic causes. Accordingly, the journal Birth Defects Research takes an integrated, multidisciplinary approach in its organization and publication strategy. The journal Birth Defects Research contains separate sections for clinical and molecular teratology, developmental and reproductive toxicology, and reviews in developmental biology to acknowledge and accommodate the integrative nature of research in this field. Each section has a dedicated editor who is a leader in his/her field and who has full editorial authority in his/her area.

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