[Medical and social assessment of the quality of life of a family with a child suffering from food allergy].

Q2 Medicine
Voprosy pitaniia Pub Date : 2023-01-01 Epub Date: 2023-10-30 DOI:10.33029/0042-8833-2023-92-6-54-63
M M Fedotova, Z A Naumov, V D Prokopyeva, U V Kutas, M S Sofronova, D V Kozyritskaya, E M Kamaltynova, O S Fedorova
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引用次数: 0

Abstract

Food allergy (FA) is a health problem that adversely affect the quality of life of children and their family members. The purpose of the study was to assess the quality of life in families with children affected FA. Material and methods. A cross-sectional study was conducted in a group of 75 children with a confirmed FA (at the age of Me 4.9 years [1.3; 7.1]). One of the caregivers of the child was asked to complete the Russian version of a specialized questionnaire «The Food hypersensitivity famiLy ImPact, FLIP» for assessing the life quality of families with children affected FA. Results. Diet organization is the main concern affecting quality of life, while the daily life of the family and the emotional sphere are less impacted. Age, type of food allergens and clinical manifestations do not significantly contribute the life quality indicators. Hypersensitivity to several food is statistically associated with changes in everyday life and emotions. Non-compliance with the diet is associated with a lower impact of FA on quality of life. 56% of respondents worried about the nutritional value of child's diet and 49.3% of caregivers reported that a child's FA significantly impacted grocery shopping behaviors (reading labels, etc.). At the same time, 73.3% noted that child's FA does not affect the diet of other family members. Also, 33.3% of the parents experienced anxiety due to child's FA and 38.7% are worried that FA might stay persistent. 30.7% of respondents are afraid of accidental consuming of allergenic products. Conclusion. The acquired results indicate the importance of quality of life assessment for understanding the social aspects of FA. Strategies to improve the quality of life include the development of informational and educational programs both for parents and patients. In order to estimate impact of FA to life quality from the patient's perspective further development of questionnaires adapted for children and adolescents is necessary.

[食物过敏患儿家庭生活质量的医学和社会评估]。
食物过敏(FA)是一个对儿童及其家庭成员的生活质量产生不利影响的健康问题。本研究旨在评估有食物过敏患儿的家庭的生活质量。材料和方法。本研究对 75 名确诊患有先天性脑瘫的儿童(年龄为 4.9 岁 [1.3; 7.1])进行了横断面研究。其中一名患儿的照顾者被要求填写俄文版的 "食物过敏家庭影响"(FLIP)专门问卷,以评估有患过敏症儿童的家庭的生活质量。结果显示饮食安排是影响生活质量的主要问题,而家庭日常生活和情感领域受到的影响较小。年龄、食物过敏原类型和临床表现对生活质量指标的影响不大。据统计,对几种食物过敏与日常生活和情绪的变化有关。不遵守饮食规定与 FA 对生活质量的影响较低有关。56% 的受访者担心儿童饮食的营养价值,49.3% 的照顾者表示儿童的 FA 严重影响了他们的购物行为(阅读标签等)。同时,73.3% 的人指出孩子的 FA 不会影响其他家庭成员的饮食。此外,33.3% 的家长因孩子的 FA 而感到焦虑,38.7% 的家长担心孩子的 FA 可能会持续存在。30.7%的受访者害怕误食致敏产品。结论所得结果表明,生活质量评估对于了解 FA 的社会方面非常重要。改善生活质量的策略包括为家长和患者制定信息和教育计划。为了从患者的角度评估 FA 对生活质量的影响,有必要进一步开发适合儿童和青少年的调查问卷。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Voprosy pitaniia
Voprosy pitaniia Medicine-Medicine (all)
CiteScore
2.00
自引率
0.00%
发文量
46
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