Quality of life in children with chronic kidney disease

IF 0.2 Q4 PEDIATRICS
Ari Fibrianto, Hertanti Indah Lestari, Yudianita Kesuma, Moretta Damayanti, Eka Intan Fitriana, Rismarini Rismarini
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Abstract

Background Chronic kidney disease (CKD) has become a global burden on the healthcare system and significantly impacts the quality of life of children with the condition. Objective To assess quality of life in children with CKD as well as its relationship with sociodemographic, medical, and psychosocial factors. Methods This cross-sectional analytic study was conducted from June to November 2021 at Dr. Moh Hoesin Hospital, Palembang. Children with CKD aged 2–18 years were included by consecutive sampling. Parents and patients were asked to complete the PedsQL™ generic score scale version 4.0 questionnaire. Results We assessed quality of life in 112 children with CKD from parents’ and children’s reports in the PedsQL™ questionnaire. Physical and emotional parameters had the lowest scores. Based on parental reports, quality of life was significantly associated with disease severity (P=0.002), behavioral disorders (P=0.007), and sleep disturbances (P=0.001). Based on the children’s reports, the factors significantly associated with quality of life were anemia (P=0.044), sleep disturbances (P=0.024), and behavioral disorders (P=0.002). Almost one-third of children with CKD had general impairment of quality of life, both from parental reports (32.1%) and children’s reports (33.0%). Conclusion Disease severity, anemia, sleep disturbance, and behavioral disorders were all associated with poorer quality of life in children with CKD.
慢性肾病儿童的生活质量
背景 慢性肾脏病(CKD)已成为全球医疗系统的负担,并严重影响患儿的生活质量。 目的 评估慢性肾脏病患儿的生活质量及其与社会人口、医疗和社会心理因素的关系。 方法 该横断面分析研究于 2021 年 6 月至 11 月在巴伦邦的 Moh Hoesin 医生医院进行。2-18 岁患有慢性肾脏病的儿童通过连续抽样的方式被纳入研究范围。要求家长和患者填写 PedsQL™ 通用评分量表 4.0 版问卷。 结果 我们根据家长和儿童在 PedsQL™ 问卷中的报告评估了 112 名患有慢性肾脏病的儿童的生活质量。身体和情感参数得分最低。根据家长的报告,生活质量与疾病严重程度(P=0.002)、行为障碍(P=0.007)和睡眠障碍(P=0.001)有显著相关性。根据儿童的报告,与生活质量明显相关的因素是贫血(P=0.044)、睡眠障碍(P=0.024)和行为障碍(P=0.002)。根据家长(32.1%)和儿童(33.0%)的报告,近三分之一的慢性肾脏病患儿的生活质量普遍受损。 结论 疾病严重程度、贫血、睡眠障碍和行为障碍都与慢性肾脏病儿童较差的生活质量有关。
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来源期刊
CiteScore
0.40
自引率
0.00%
发文量
58
审稿时长
24 weeks
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