Relationship between quality of life, self-efficacy and social support in patients with multiple sclerosis.

Ilkay Zeynep Gurbuz, Semiha Akin
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Abstract

Background: Multiple sclerosis (MS) causes patients' perceptions of self-efficacy and social support to decline. Patients with MS have to change day-to-day activities and encounter various physical and psychosocial problems while adapting to the new lifestyle.

Aims: The research aimed to define the quality of life, self-efficacy and social support in patients with MS and to determine the relationship between quality of life, perception of self-efficacy and perceived social support. It is descriptive and correlational research. Data were collected using surveys.

Methods: The sample consisted of 116 patients with MS. Patients who applied at the neurology in-patient and outpatient clinics between March 2021 and September 2021 were assessed for inclusion criteria. Written and verbal consent was obtained. The patients read and answered the questionnaires. Their quality of life was assessed using the Functional Assessment of Multiple Sclerosis Scale (FAMS). Self-efficacy perception was measured using the General Self-Efficacy Scale (GSE), and social support was assessed using the Multidimensional Scale of Perceived Social Support (MSPSS).

Results: The study found that the other concerns, symptoms, thinking and fatigue were most negatively affected the quality of life subscales. Perception of self-efficacy was found to be moderate, while social support was high. Analyses revealed a positive correlation between MSPSS scores, FAMS scores and GSE scores (p<0.05).

Conclusion: Health professionals need to provide education and counselling to manage MS-related symptoms, use therapeutic communication techniques to improve self-efficacy, give positive reinforcement and cooperate with families to increase social support.

多发性硬化症患者的生活质量、自我效能感和社会支持之间的关系。
背景:多发性硬化症(MS)导致患者的自我效能感和社会支持下降。多发性硬化症患者必须改变日常活动,在适应新生活方式的过程中会遇到各种生理和心理问题。研究目的:本研究旨在界定多发性硬化症患者的生活质量、自我效能感和社会支持,并确定生活质量、自我效能感和感知的社会支持之间的关系。这是一项描述性和相关性研究。数据通过调查收集:样本包括 116 名多发性硬化症患者。评估标准包括 2021 年 3 月至 2021 年 9 月期间在神经内科住院和门诊就诊的患者。调查获得了患者的书面和口头同意。患者阅读并回答问卷。他们的生活质量通过多发性硬化症功能评估量表(FAMS)进行评估。自我效能感采用一般自我效能量表(GSE)进行测量,社会支持采用感知社会支持多维量表(MSPSS)进行评估:研究发现,其他关注、症状、思维和疲劳对生活质量的分量表影响最大。自我效能感中等,而社会支持感较高。分析表明,MSPSS 评分、FAMS 评分和 GSE 评分之间存在正相关(p 结论:医护人员需要提供教育和咨询来控制多发性硬化症相关症状,使用治疗沟通技巧来提高自我效能感,给予积极的强化,并与家庭合作以增加社会支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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