Experiences of Family Caregivers Providing Home Care to Older Patients With Cancer: A Qualitative Study.

Cheng-Fang Yang, Chien-Ning Tseng, Yuan-Ju Liao, Zi-Xuan Gao, Hsiao-Ping Chen, Po-Chih Chang, Yun-Hsiang Lee
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Abstract

Background: Older patients with cancer receive anticancer therapy in outpatient settings, and care-related issues may occur after discharge, which often requires family caregivers (FCs) to play a significant role in providing cancer care at home. However, relatively few studies have been focused on exploring the care experiences of these FCs.

Purpose: The aim of this study was to explore the care experiences of FCs caring for older family members with cancer at home.

Methods: A qualitative study design and in-depth individual interviews were used to explore the at-home care experiences of FCs of older patients with cancer. The research was conducted in chemotherapy outpatient settings of a medical center in northern Taiwan. Content analysis was used to analyze data. The analyses focused on first extracting meaningful units from the text and then inducting categories from these units and determining the major themes.

Results: Twenty FCs were interviewed. The three themes identified included (a) increased information needs and challenges in diet preparation and treatment decision making, (b) personal and patient-induced emotional stress, and (c) life rebalancing through the care experience.

Conclusions/implications for practice: The findings highlight the educational requirements, especially related to meeting personal dietary needs and obtaining psychological support, for FCs caring for older patients with cancer to help them rebalance their life.

家庭照护者为老年癌症患者提供居家照护的经验:一项质性研究。
背景:老年癌症患者在门诊接受抗癌治疗,出院后可能出现护理相关问题,这通常需要家庭照顾者(fc)在提供家庭癌症护理方面发挥重要作用。然而,相对较少的研究集中于探索这些fc的护理经验。目的:本研究旨在探讨家庭护理人员在家照护罹患癌症的年长家庭成员的经验。方法:采用质性研究设计和深度个体访谈法,探讨老年癌症患者fc的居家护理体验。本研究在台湾北部某医疗中心的化疗门诊进行。采用内容分析法对数据进行分析。分析的重点是首先从文本中提取有意义的单位,然后从这些单位中归纳出类别,确定主要主题。结果:共访谈20例fc患者。确定的三个主题包括(a)在饮食准备和治疗决策方面增加的信息需求和挑战,(b)个人和患者引起的情绪压力,以及(c)通过护理体验重新平衡生活。结论/实践意义:研究结果强调了教育要求,特别是与满足个人饮食需求和获得心理支持有关的教育要求,以帮助护理老年癌症患者的家庭护理人员重新平衡他们的生活。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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