Future risk in Japanese parents raising children with special needs

Naoya Hakumura
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Abstract

This paper examines relationships in married couples raising children with special needs — children requiring medical care, from an economic point of view in the context of parental employment. There is an opinion that the burden of parents with children requiring medical care who are close to being a “handicapped child” is so heavy, that the couple’s relationship can be jeopardized. How does the parents’ employment relate to the burden of parenting and how does it affect the couple’s relationship? The research method is a survey of married couples with children throughout Japan (conducted in 2021). The questionnaire consisted of two parts: with multiple choice questions and open-ended questions. The multiple choice questions dealt with (1) family structure: number of persons in the household including number of children requiring medical care and their age, (2) parental employment, and (3) marital relationship (division of housework and childcare, communication between parents, frequency and reasons for fights). In considering how parents work, terms such as “shared responsibility” for dual-income families and “isolation” and “cooperation” for single-income families were key words in considering sustainable marital relations. The open-ended questions part shows what is necessary for the parents to maintain a sustainable relationship. In this paper we come to the conclusion that one of the reasons for troubles that the parents face is the fact that the definition of the term “children requiring medical care” is too broad. We suggested that this term should be subdivided so that administrative support could be spread widely, and that support should be tailored to the family’s lifestyle (e.g., career and other parental needs).
日本父母抚养有特殊需要的孩子的未来风险
本文从父母就业的经济角度考察了已婚夫妇抚养有特殊需要的孩子——需要医疗照顾的孩子——的关系。有一种观点认为,由于子女接近残疾,需要医疗照顾的父母负担太重,可能会危及夫妻关系。父母的工作与养育子女的负担有何关系?这对夫妻关系有何影响?研究方法是对日本各地有子女的已婚夫妇进行调查(2021年)。问卷由两部分组成:选择题和开放式问题。多项选择题涉及(1)家庭结构:家庭中的人数,包括需要医疗照顾的儿童人数及其年龄;(2)父母的就业情况;(3)婚姻关系(家务和育儿的分工、父母之间的沟通、争吵的频率和原因)。在考虑父母如何工作时,双收入家庭的"共同责任"和单收入家庭的"孤立"和"合作"等术语是考虑可持续婚姻关系的关键词。开放式问题部分显示了父母维持可持续关系的必要条件。在本文中,我们得出的结论是,父母面临的麻烦的原因之一是“需要医疗照顾的儿童”一词的定义过于宽泛。我们建议这个术语应该细分,以便行政支持可以广泛传播,并且支持应该根据家庭的生活方式(例如,职业和其他父母需求)量身定制。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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