Dietary Adherence Regimen Program for Mothers of Children with Phenylketonuria Based on behavior Cognitive learning Theory

Abstract

Background : phenylketonuria (PKU), cause severe intellectual disability in children if neglected and can lead to utmost predominant effects of mental delay. Dietary compliance depends on people caring for PKU children through modifying their behaviour and knowledge. Aim : this study aims to evaluate the dietary adherence regimen program for mothers of children with phenylketonuria based on behavior cognitive learning theory. Research design : A quasi-experimental design was used in this study. Settings: The study was conducted at the nutrition clinic and Specific Hereditary Outpatient Clinic in Children’s Hospital associated to Mansoura University Hospital at Mansoura city, Egypt. Subjects and method : the sample comprised of 100 mothers of children with PKU. Purposive sample technique was used to recruit study participants . Tools : The researchers used one tool names structured interview sheet: that contain four parts. Part I: demographic characteristic, part II: child medical history, part III: Mothers’ knowledge, part IV: grounded on Behavioral cognitive learning theory (pre and post). Results : this study displayed statistically significant enhancement in mother's knowledge, behaviour cognitive learning theory items (22.21 ± 6.83 to 26.90 ± 7.19) (60.27±36.67 to 101.02±40.78), respectively pre VS post program. The researchers concluded that there were improving in mothers’ knowledge, attitude, beliefs, subjective norms, and self-efficacy regarding dietary adherence regimen program of their phenylketonuria children based on behaviour cognitive learning theory. Recommendations: continuity of dietary adherence regimen program for mothers of their children affected with phenylketonuria based on behaviour cognitive learning theory ongoing dietetic input is needed to further enhance knowledge of the PKU diet.