Health Related Quality of Life of Patients with Sickle Cell Disease

Journal of Blood Disorders and Transfusion Pub Date : 2016-04-04 DOI:10.4172/2155-9864.1000345

M. Matos, Cristiane Dias Malheiros, Simone Souza da Rocha Matos

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引用次数: 12

Abstract

Objective: The aim of the present study was to evaluate the health-related quality of life in pediatric patients with Sickle Cell Disease. Methods: An analytical cross-sectional study was performed. Pediatric patients suffering from Sickle Cell Disease below the age of 21 were compared with asymptomatic pediatric individuals. Clinical and demographic data were collected along with the Pediatric Quality of Life Inventory (PedsQL 4.0). Results: The sample was composed of 68 children and adolescents in the "Sickle cell group" and 44 in the "Comparison group". Children and adolescent with SCD had lower scores of health related quality of life compared with healthy subjects in the domains physical (68.3 versus 88.8), social (71.1 versus 90.7), and school functioning (60.2 versus 78.7). The domain emotional functioning was not significantly different (62.1 versus 66.5). Conclusion: The results of the present study demonstrated that children and adolescents with SCD had lower scores of quality of life in the domains activities, social and school functioning when compared to healthy pediatric individuals.

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镰状细胞病患者的健康相关生活质量

目的:本研究的目的是评估镰状细胞病儿童患者的健康相关生活质量。方法:进行分析性横断面研究。21岁以下的儿童镰状细胞病患者与无症状的儿童个体进行比较。临床和人口统计数据与儿科生活质量量表(PedsQL 4.0)一起收集。结果:“镰状细胞组”68例，“对照组”44例。与健康受试者相比，患有SCD的儿童和青少年在身体(68.3比88.8)、社会(71.1比90.7)和学校功能(60.2比78.7)方面的健康相关生活质量得分较低。领域情绪功能差异无统计学意义(62.1比66.5)。结论:本研究结果表明，与健康儿童相比，患有SCD的儿童和青少年在活动、社会和学校功能领域的生活质量得分较低。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Journal of Blood Disorders and Transfusion

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