The Cultural Validation of Two Scales assessing Albinism - related Social Stigma among High School Students in Tanzania

T. D. Groot, R. Peters, W. Brakel, P. Meurs, W. Jacquet
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引用次数: 7

Abstract

Purpose: Albinism in Tanzania causes fierce stigmatisation. Although various stigma reduction interventions (SRI) are employed, research on their effectiveness is lacking. This research aimed to develop a tool to measure albinism-related social stigma among high school students in Tanzania. Cultural equivalence was tested for the Explanatory Model Interview Catalogue Community Stigma Scale (EMIC-CSS) and Albinism Social Distance Scale for Adolescents (ASDS-A) assessing conceptual, item, semantic, operational and measurement equivalence. Methods: The methods used were workshops, in-depth interviews, translation and re-translation, discussions, a test (n=337) re-test (n=142) of the survey, and follow-up focus group discussions (n=25). Results: The Scales have proven to be adequate on all equivalences other than measurement equivalence. The reproducibility statistics raise questions that can be explained by characteristics of the sample. Conclusion and Implications: The analysis provides insights for further validation of the Scales, contributes to the discussion about a universal stigma measurement tool and demonstrates the importance of validation studies of existing and proven tools used in a different context.
坦桑尼亚高中生白化病相关社会污名的两种量表的文化验证
目的:白化病在坦桑尼亚引起强烈的污名化。虽然采用了各种污名减少干预措施(SRI),但缺乏对其有效性的研究。本研究旨在开发一种工具来测量坦桑尼亚高中生与白化病相关的社会耻辱。对解释模型访谈目录社区污名量表(EMIC-CSS)和青少年白化病社会距离量表(ASDS-A)的概念、项目、语义、操作和测量等值性进行文化等值检验。方法:采用研讨会、深度访谈、翻译再翻译、讨论、调查问卷一次检验(n=337)、二次检验(n=142)、随访焦点小组讨论(n=25)等方法。结果:该量表已被证明在除测量等值外的所有等值上都是适当的。再现性统计提出的问题可以用样本的特征来解释。结论和意义:该分析为进一步验证量表提供了见解,有助于讨论普遍的病耻感测量工具,并证明了在不同背景下使用现有和已证实的工具进行验证研究的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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