Exploring rural palliative care patients’ experiences of accessing psychosocial support through telehealth: A longitudinal approach

R. Rahman, J. Keenan, J. Hudson
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引用次数: 6

Abstract

In this research, we explore the experiences of rural palliative care patients receiving psychosocial support through telehealth. A longitudinal approach considered how experiences vary over time. Three patients with a terminal cancer diagnosis were given a laptop to access psychosocial support via telehealth over three months. Semi-structured interviews were conducted at monthly intervals. Interpretative phenomenological analysis identified four themes: Deepening understanding through unburdened and continuous connections; the ever-present paradox of visible and invisible telehealth; insight into the holistic self: from barrier to facilitator; and, the immediate change from unnecessary distraction to mindful engagement. Findings challenge previous conclusions regarding the inability of telehealth to support meaningful relationships, and instead provide novel insights to explain why enabling rural palliative care patients to access support from home is supportive for their wellbeing and the quality of healthcare relationships. Our conclusions question whether the indirect benefits of telehealth could also offer a valuable way of accessing health services beyond a palliative care setting.
探讨农村姑息治疗患者通过远程医疗获得社会心理支持的经验:纵向方法
在本研究中,我们探讨农村姑息治疗患者通过远程医疗获得心理社会支持的经验。纵向方法考虑经验如何随时间变化。三名被诊断为癌症晚期的患者获得了一台笔记本电脑,以便在三个月内通过远程医疗获得心理社会支持。半结构化访谈每隔一个月进行一次。解释性现象学分析确定了四个主题:通过无负担和持续的联系加深理解;可见和不可见远程医疗始终存在的悖论;透视整体自我:从障碍到促进者而且,从不必要的分心到专心投入的直接改变。研究结果挑战了先前关于远程医疗无法支持有意义的关系的结论,并提供了新的见解,解释了为什么使农村姑息治疗患者能够从家中获得支持有助于他们的福祉和医疗保健关系的质量。我们的结论质疑远程医疗的间接效益是否也可以提供一种有价值的方式来获得姑息治疗环境之外的卫生服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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