A testimony about home dialysis in Tougué (Guinea) using the NxStage® portable haemodialysis system

Bulletin de la Dialyse à Domicile Pub Date : 2022-06-15 DOI:10.25796/bdd.v5i2.66703

Alhassane Diallo

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Abstract

Several testimonials have already appeared in the Bulletin de la Dialyse à Domicile or the website of the French-language Peritoneal Dialysis Registry detailing patient experiences remarkable for their empowerment at home (1), or for the achievement of sports and human challenges such as that of Fabrice HURE (2) or Jean Louis CLEMENDOT (3). The testimony we report is the travel story of Mr Alhassane DIALLO, a dialysis patient who wanted to join his family in Guinea at a great distance from any dialysis clinic, a journey that home dialysis allowed, but not without hardships. We hope that this experience can help other patients with independent travel plans. The success of this project was due to the unwavering determination of Mr DIALLO but also to a collective organization that requested the administrative, logistical and pharmacy services of the AUB Santé Foundation and close cooperation between the French and Guinean medical teams. This experience shows us how important travel limitations are in the experience of dialysis patients, and particularly in that of expatriate patients. In addition, it highlights the significant inequalities in access to care in the world: Guinea has only one dialysis centre, in Conakry. Eric LARUELLE, MD, Nephrologist, AUB Santé Foundation* Picault, Christelle. 2019. « Dialyse Longue Nocturne à Domicile à Bas débit De Dialysat. ». Bulletin De La Dialyse à Domicile 2 (1), 33-36. https://doi.org/10.25796/bdd.v2i1.19143. 2/ Fabrice Huré. La montagne dans le sang. Un témoignage humain d’un patient dialysé de nuit pour les autres patients. Bulletin Dialyse Domicile N°1.Vol 2. Avril 2019 DOI : https://doi.org/10.25796/bdd.v2i1.19153 3/ Témoignages : la traversée de l'Atlantique en solitaire en dialyse péritonéale.https://www.rdplf.org/information-patients/temoignages-patients.html?id=337

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关于在几内亚tougu使用NxStage®便携式血液透析系统进行家庭透析的证词

《西班牙住所透析公报》(Bulletin de la Dialyse Domicile)或法语腹膜透析登记处(腹膜透析登记处)的网站上已经出现了一些证词，详细介绍了患者在家中获得授权的非凡经历(1)，或法布莱斯·赫尔(Fabrice HURE)或让·路易斯·克莱门多(Jean Louis CLEMENDOT)等人在体育和人类挑战方面取得的成就(3)。我们报道的证词是Alhassane DIALLO先生的旅行故事。一个透析病人，他想和他在几内亚的家人团聚，远离任何透析诊所，家庭透析允许这一旅程，但并非没有艰辛。我们希望这次经历可以帮助其他有独立旅行计划的患者。该项目的成功归功于DIALLO先生坚定不移的决心，但也归功于一个集体组织，该组织要求AUB sant基金会提供行政、后勤和药房服务，以及法国和几内亚医疗队之间的密切合作。这一经验向我们表明，旅行限制在透析患者的经历中是多么重要，特别是在外籍患者的经历中。此外，报告还强调了世界上在获得医疗服务方面的严重不平等:几内亚只有一个透析中心，位于科纳克里。Eric LARUELLE，医学博士，肾脏病专家，AUB sant基金会* Picault, Christelle。2019。《透视Longue Nocturne》，《住所》，《透视》。»。《透析通讯》，2(1)，33-36。https://doi.org/10.25796/bdd.v2i1.19143。2/ Fabrice hur。La montagne dans le sang。在病人的日常生活中，没有人会对病人的生活产生影响。公报透析住所N°1。卷2。2019年4月3日DOI: https://doi.org/10.25796/bdd.v2i1.19153 3/ tsamoignages: la traverse de l'Atlantique en solitaire en dialyse psamitonsamale .https://www.rdplf.org/information-patients/temoignages-patients.html?id=337

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Bulletin de la Dialyse à Domicile

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