Community action research in disability (CARD): An inclusive research programme in Uganda

S. Hartley, A. Yousafzai, M. G. Kaahwa, H. Finkenflügel, Alisha N. Wade, G. Bazirake, M. L. Drachler, J. Seeley, Y. Alavi, W. Mataze, E. Mucuriguzi
{"title":"Community action research in disability (CARD): An inclusive research programme in Uganda","authors":"S. Hartley, A. Yousafzai, M. G. Kaahwa, H. Finkenflügel, Alisha N. Wade, G. Bazirake, M. L. Drachler, J. Seeley, Y. Alavi, W. Mataze, E. Mucuriguzi","doi":"10.5463/DCID.V28I1.630","DOIUrl":null,"url":null,"abstract":"The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later. The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disabled People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups. CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"75 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2017-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Disability, CBR and Inclusive Development","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.5463/DCID.V28I1.630","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1

Abstract

The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later. The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disabled People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups. CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research.
残疾社区行动研究:乌干达的一个包容性研究方案
“没有我们,就没有我们”这句话所反映的解放性残疾研究(EDR)的思想,最早是在20世纪90年代提出的。尽管它旨在将研究控制权交给“被研究”的人,即残疾人,但即使在25年后的今天,这种情况也很少发生。乌干达的社区残疾行动研究(CARD)项目接受并修改了EDR方法,认识到需要将残疾人纳入从概念到结果的研究过程,并培养所有利益相关者之间的参与和合作,以实现基于行动的研究。研究小组成员包括残障人士、残障人士组织(DPOs)的工作人员、学者和服务提供者。它努力围绕对残疾人及其家庭重要的问题进行研究。领导角色由团队成员分配。CARD方案的目标是:(1)资助在乌干达开展基于行动的残疾研究的小组;(2)在Kyambogo大学教务处内发展研究和管理能力,以管理该倡议;(3)将研究所得的新知识纳入正在进行的社区康复及特殊教育课程;(4)确保研究成果广泛传播到所有利益相关者群体。该计划运行了5年,在残疾和社区服务领域委托进行了21项行动研究。本文描述了这一过程,介绍了12项已完成的研究,考察了目标实现的程度,并评估了参与研究团队的经验,特别是在纳入残疾成员方面。报告最后对旨在促进残疾研究的有效性、良好价值和包容性方法的未来倡议提出了建议。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信