PSYCHOLOGICAL ADJUSTMENT EFFECTIVITY IN ELDER SIBLINGS OF CHILDREN WITH DOWN SYNDROME

Devina Kurniawan Santoso, Penny Handayani
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引用次数: 2

Abstract

Elder siblings play an important role in the family such as being a replacement caregiver for the children with Down syndrome. Therefore, they need an effective psychological adjustment to fulfill the responsibility. The purpose of this study is to describe the effectiveness of psychological adjustment in elder siblings of a Down syndrome children .  This research was done using narrative qualitative method by interviewing and observing four elder siblings’ of children with Down syndrome. Each participants have different combinations of age-spacing with the Down syndrome children and number of siblings. The result shows some variety of effectiveness of psychological adjustment within each participants. The variety was caused by some individual factors, such as parents involvement and siblings’ relationship quality.
唐氏综合征患儿兄长姐妹的心理适应效果
哥哥姐姐在家庭中扮演着重要的角色,比如作为唐氏综合症患儿的替代照顾者。因此,他们需要有效的心理调适来履行责任。本研究的目的是描述心理调整对唐氏综合症儿童的哥哥姐姐的有效性。本研究采用叙事定性方法,对4位唐氏综合征患儿的哥哥姐姐进行访谈和观察。每个参与者与唐氏综合症儿童的年龄间隔和兄弟姐妹的数量有不同的组合。结果显示,每个参与者的心理调整效果各不相同。这种变化是由一些个人因素造成的,比如父母的参与和兄弟姐妹的关系质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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