Evelyn Gonzalez, Armenta L. Washington, N. Esnaola
{"title":"Abstract A22: Improving the community's understanding of research through lay ambassadors","authors":"Evelyn Gonzalez, Armenta L. Washington, N. Esnaola","doi":"10.1158/1538-7755.DISP17-A22","DOIUrl":null,"url":null,"abstract":"Clinical trials are pathways to the discovery of effective new methods of prevention, treatment and rehabilitation for many diseases, including cancer. In addition, the collection of biospecimens is a critical element in emerging genetic and biologic studies. However, evidence has shown that despite the increasing advances in newly developed novel and targeted biologic therapies and the compelling scientific and social justice arguments for participation by all populations, ethnic and racial minorities continue to be under-represented. One key reason noted is the lack of awareness minority populations have regarding research options. Through our Community Ambassador Training program, we established a connection with African American audiences by educating trusted community stakeholders and representatives about the importance of research participation and how the research process works. Working through community partners and building on prior research efforts, Community Health Educators (CHE) funded by NCI9s Center to Reduce Cancer Health Disparities recruited 21 African American lay educators (cancer and noncancer survivors) to participate in the study. Results from the training include changes in knowledge, attitudes, and intent to participate in research; dissemination reach; lessons learned; and next steps in our efforts to enhance and expand the program to address this gap in research participation. Citation Format: Evelyn T. Gonzalez, Armenta Washington, Nestor F. Esnaola. Improving the community9s understanding of research through lay ambassadors [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstract nr A22.","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"95 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Behavioral and Social Science","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1158/1538-7755.DISP17-A22","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Clinical trials are pathways to the discovery of effective new methods of prevention, treatment and rehabilitation for many diseases, including cancer. In addition, the collection of biospecimens is a critical element in emerging genetic and biologic studies. However, evidence has shown that despite the increasing advances in newly developed novel and targeted biologic therapies and the compelling scientific and social justice arguments for participation by all populations, ethnic and racial minorities continue to be under-represented. One key reason noted is the lack of awareness minority populations have regarding research options. Through our Community Ambassador Training program, we established a connection with African American audiences by educating trusted community stakeholders and representatives about the importance of research participation and how the research process works. Working through community partners and building on prior research efforts, Community Health Educators (CHE) funded by NCI9s Center to Reduce Cancer Health Disparities recruited 21 African American lay educators (cancer and noncancer survivors) to participate in the study. Results from the training include changes in knowledge, attitudes, and intent to participate in research; dissemination reach; lessons learned; and next steps in our efforts to enhance and expand the program to address this gap in research participation. Citation Format: Evelyn T. Gonzalez, Armenta Washington, Nestor F. Esnaola. Improving the community9s understanding of research through lay ambassadors [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstract nr A22.
临床试验是发现预防、治疗和康复许多疾病(包括癌症)的有效新方法的途径。此外,生物标本的收集是新兴的遗传和生物学研究的一个关键因素。然而,有证据表明,尽管在新开发的新型靶向生物疗法方面取得了越来越大的进展,并且所有人口都参与的科学和社会正义论点令人信服,但少数民族和种族的代表性仍然不足。指出的一个关键原因是少数民族对研究选择缺乏认识。通过我们的社区大使培训项目,我们通过教育值得信赖的社区利益相关者和代表,让他们了解参与研究的重要性以及研究过程如何运作,与非裔美国人建立了联系。通过社区合作伙伴和在先前的研究成果的基础上,由nci9减少癌症健康差异中心资助的社区健康教育者(CHE)招募了21名非裔美国非专业教育者(癌症和非癌症幸存者)参与这项研究。培训的结果包括知识、态度和参与研究意图的改变;传播范围;经验教训;下一步,我们将努力加强和扩大该项目,以解决研究参与方面的差距。引文格式:Evelyn T. Gonzalez, Armenta Washington, Nestor F. Esnaola。通过外行大使提高社区对研究的理解[摘要]。见:第十届AACR会议论文集:种族/少数民族和医疗服务不足人群的癌症健康差异科学;2017年9月25-28日;亚特兰大,乔治亚州。费城(PA): AACR;癌症流行病学杂志,2018;27(7增刊):摘要nr A22。