Why and How Stories Matter in Treating Children with T1DM—Best Practice from CDiC

S. Kalra, R. Shukla, Shuchy Chugh, P. Dinakaran
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Abstract

Type 1 diabetes mellitus (T1DM) is a lifelong disorder that mostly happens any time during childhood. It needs constant care and attention. Self-management becomes very essential as there are multiple factors that influence management of blood glucose levels and good outcomes. Diabetes education1 is essential for this and it involves the process of providing the person with the knowledge and skills needed to perform diabetes self-care, manage crises, and to make lifestyle changes to successfully manage their life. It begins with teaching of survival skills and continues with higher learning to fit diabetes into lives of people with diabetes rather than changing the lives to manage diabetes. Although parents are responsible for this initially, children must be part of this learning and journey as they are the one who must deal with diabetes in their life.Although knowledge transfer from scientific (truth and fact based) and narrative story (experience and meaning based) is fundamentally different but narrative or stories are better absorbed and retained. Storytelling and experience sharing are rapidly developing fields in medical education, but its potential has yet to be realized in medical education. The Changing Diabetes in Children program focused at reaching out to the economically underprivileged children with T1DM has implemented the use of stories to help the T1DM child learn to take insulin injections and understand the basic do’s and don’t’s for proper diabetes management and motivate them to become self-reliant and independent adults in long run.
故事在治疗t1dm患儿中的作用:来自CDiC的最佳实践
1型糖尿病(T1DM)是一种常见于儿童期的终身疾病。它需要持续的照顾和关注。自我管理变得非常重要,因为有多种因素影响血糖水平的管理和良好的结果。糖尿病教育1对此至关重要,它包括向患者提供进行糖尿病自我护理、管理危机和改变生活方式以成功管理其生活所需的知识和技能的过程。它从教授生存技能开始,继续进行更高层次的学习,使糖尿病患者适应他们的生活,而不是改变他们的生活来管理糖尿病。虽然父母最初是负责的,但孩子们必须成为这一学习和旅程的一部分,因为他们是一生中必须处理糖尿病的人。虽然科学(基于真理和事实)和叙事故事(基于经验和意义)的知识转移本质上是不同的,但叙事或故事更容易被吸收和保留。故事叙述和经验分享是医学教育中发展迅速的领域,但其在医学教育中的潜力尚未得到充分发挥。“改变儿童糖尿病”项目的重点是接触到经济条件较差的T1DM儿童,通过故事的方式帮助T1DM儿童学习注射胰岛素,了解正确管理糖尿病的基本注意事项,并激励他们成为自力更生和独立的成年人。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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