Research Progress of Quality of Life in Patients with Neuromyelitis Optica Spectrum Disorders

Abstract

Optic neuromyelitis optica spectrum disorders (NMOSD) are characterized by high recurrence and disability, with blindness or paraplegia present early and accompanied by other different clinical symptoms. The degree of disability increases with disease recurrence and has a significant impact on patients’ daily life and mental health, as well as on their quality of life. The focus of research on NMOSD in China has been on the pathogenesis, diagnosis and treatment of the disease, but quality of life has not been widely emphasized, and there are few interventions for quality of life. In order to have a more comprehensive and objective understanding of the quality of life of NMOSD patients and the factors influencing it, the evaluation tools and related factors affecting the quality of life of NMOSD patients are reviewed with the aim of providing a basis for clinical research and clinical practice. It is suggested that evidence-based personalized nursing interventions can be carried out in future clinical work to further explore effective intervention methods that are suitable for our clinical reality and can improve the quality of life of NMOSD patients, and provide a basis for the construction of systematic intervention programs.