Make Family Caregivers Visible, Valued, and Supported: An Interview with Patients' Caregivers' Advocate.

IF 1.7 4区医学 Q3 HEMATOLOGY

Acta Haematologica Pub Date : 2023-01-01 DOI:10.1159/000527734

Pia Raanani, Rachel Ledany

引用次数: 0

Abstract

Many people will need support and help with their daily functioning during their adult life. The solution to this need for support might be either by using a formal or an informal care and support system. Informal care is delivered by nonprofessionals (usually family members) not paid for their duty, defined as the caregivers. The care provided by relatives requires understanding, knowledge, and skills in a wide variety of fields. In this interview, we try to shed light on the place and role of the caregiver, sometimes an invisible major player in the patient's journey.

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让家庭照顾者可见，重视和支持:对患者照顾者倡导者的采访。

许多人在成年后的日常生活中需要支持和帮助。解决这种需要支持的办法可能是使用正式或非正式的照顾和支持系统。非正式护理是由非专业人员(通常是家庭成员)提供的，他们的职责没有报酬，被定义为照顾者。亲属提供的照顾需要在各个领域的理解、知识和技能。在这次采访中，我们试图阐明护理人员的地位和作用，有时是病人旅程中看不见的主要参与者。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Acta Haematologica 医学-血液学

CiteScore

4.90

自引率

0.00%

发文量

审稿时长

6-12 weeks

期刊介绍： ''Acta Haematologica'' is a well-established and internationally recognized clinically-oriented journal featuring balanced, wide-ranging coverage of current hematology research. A wealth of information on such problems as anemia, leukemia, lymphoma, multiple myeloma, hereditary disorders, blood coagulation, growth factors, hematopoiesis and differentiation is contained in first-rate basic and clinical papers some of which are accompanied by editorial comments by eminent experts. These are supplemented by short state-of-the-art communications, reviews and correspondence as well as occasional special issues devoted to ‘hot topics’ in hematology. These will keep the practicing hematologist well informed of the new developments in the field.