{"title":"Weathering the Storm of Caregiving for Persons with Alzheimer's Disease.","authors":"Lori Kokoszka","doi":"10.1097/NHH.0000000000001195","DOIUrl":null,"url":null,"abstract":"<p><p>Alzheimer's disease (AD) is a progressive incurable disease affecting an individual's cognitive, behavioral, and physical systems. As individuals become more impaired, assistance is required and care may be provided by spouses, family members, or other close companions who serve as informal caregivers. To examine the perceptions and meaning of caring for a person with AD an interpretive descriptive study was used. Semistructured interviews were conducted with 13 informal caregivers. Data analysis revealed two themes: Grappling with the Responsibilities of Invisible Care and Weathering the Storm of Visible Care. Both themes relate to the stress and struggle of the visible and invisible roles of caregivers. The results of the study strengthen the need for home care clinicians to support caregivers who provide both visible and invisible care for persons with AD.</p>","PeriodicalId":37842,"journal":{"name":"Home healthcare now","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Home healthcare now","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1097/NHH.0000000000001195","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
引用次数: 0
Abstract
Alzheimer's disease (AD) is a progressive incurable disease affecting an individual's cognitive, behavioral, and physical systems. As individuals become more impaired, assistance is required and care may be provided by spouses, family members, or other close companions who serve as informal caregivers. To examine the perceptions and meaning of caring for a person with AD an interpretive descriptive study was used. Semistructured interviews were conducted with 13 informal caregivers. Data analysis revealed two themes: Grappling with the Responsibilities of Invisible Care and Weathering the Storm of Visible Care. Both themes relate to the stress and struggle of the visible and invisible roles of caregivers. The results of the study strengthen the need for home care clinicians to support caregivers who provide both visible and invisible care for persons with AD.
期刊介绍：
Home Healthcare Now is the professional, contemporary journal serving the educational and communication needs of home care and hospice nurses. The journal is highly interactive and timely, focusing on the multidimensional, interdisciplinary and specialty practice areas of home care nursing. Clinical, operational, and educational home care nursing issues are the core of the publication; plentiful columns and features focus on practical, up-to-date approaches to everyday situations, as well as analysis and interpretation of how healthcare trends affect the home care nurse''s practice.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
