Family Caregiver's Depression, Confidence, Satisfaction, and Burden Regarding End-of-Life Home Care for People With End-Stage Dementia.

Omega Pub Date : 2025-06-01 Epub Date: 2022-12-27 DOI:10.1177/00302228221147961
Gizell Green, Inbal Halevi Hochwald, Zorian Radomyslsky, Rachel Nissanholtz-Gannot
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Abstract

To detect differences between two care services units: regarding family-caregiver (FC) depression, perceived-burden and confidence in the provision of care to people with end-stage dementia (PWESD); examine predictors such as FC age, depression, confidence in the provision of care to PWESD and satisfaction with the community-home-care service to burden; and explore a mediation model.The participants were 139 FC, caring for PWESD living at home. The questionnaire was composed of FC background characteristics, perceived-burden, satisfaction with the community-home-care services, depression, and confidence in the provision of care to the PWESD. HCUs' FC felt significantly more burdened than HHUs' FC. Furthermore, satisfaction with the community-home-care services mediated the relationship between FC confidence in the provision of care to the PWESD and FC burden. The study results may affect the development of end-of-life care policies and services which meet the needs of PWESD and their FC.

家庭照顾者对终末期痴呆症患者临终家庭护理的抑郁、信心、满意度和负担。
目的:检测两个护理服务单位之间在家庭照顾者抑郁、感知到的负担和为终末期痴呆症患者(PWESD)提供护理的信心方面的差异;研究家庭照顾者年龄、抑郁、为终末期痴呆症患者提供护理的信心和对社区居家护理服务的满意度等预测因素对负担的影响;并探索一个中介模型。问卷内容包括家庭主妇的背景特征、感知到的负担、对社区居家护理服务的满意度、抑郁程度以及对护理残疾人士的信心。与居家护理服务相比,居家护理服务单位的功能界别明显感到负担更重。此外,对社区家居护理服务的满意度在功能界别对为残疾人士提供护理的信心与功能界别负担之间起到了中介作用。研究结果可能会影响临终关怀政策和服务的发展,以满足残疾人士及其临终关怀家庭的需要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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