Maintaining autonomy: How older persons with chronic conditions and their significant others interpret, navigate, and overcome everyday difficulties.

IF 1.9 4区医学 Q2 REHABILITATION

Scandinavian Journal of Occupational Therapy Pub Date : 2024-01-01 Epub Date: 2023-09-07 DOI:10.1080/11038128.2023.2249959

Thomas Ballmer, Brigitte Gantschnig

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引用次数: 0

Abstract

Background: The vast majority of older adults live in their own homes. Many of them live with chronic conditions that lead to activity limitations and participation restrictions. To support them adequately, we need to better understand how they cope with everyday difficulties.

Aim: To identify and examine difficulties in everyday life older people with chronic conditions who live in private homes face and how they and their significant others interpret, navigate, and overcome these difficulties.

Material and methods: We conducted a focus group interview with 10 participants including eight older adults with chronic conditions and two of their significant others. We then transcribed the interviews verbatim and thematically analysed them.

Results: We generated the three closely interrelated themes struggling not to lose control, a shifting balance between resources and environmental challenges, and negotiating independence and interdependence. Participants interpreted the difficulties they faced as multicausal. Their main goal was maintaining autonomy, agency, and a positive identity. They employed individual, creative strategies to achieve these goals.

Conclusions: Older persons with chronic conditions prioritise autonomy and agency in order to maintain a positive identity.

Significance: Interventions to support older persons with chronic conditions should centre their priorities and build on their creativity.

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保持自主性:患有慢性疾病的老年人及其重要的其他人如何解释，导航和克服日常困难。

背景：绝大多数老年人都住在自己的家里。他们中的许多人患有慢性疾病，导致活动受限和参与受限。为了充分支持他们，我们需要更好地了解他们如何应对日常困难。目的：识别和检查居住在私人住宅中的患有慢性病的老年人在日常生活中面临的困难，以及他们和他们的重要他人如何理解、驾驭和克服这些困难。材料和方法：我们对10名参与者进行了焦点小组访谈，其中包括8名患有慢性病的老年人和他们的两名重要成员。然后，我们逐字逐句地转录采访内容，并对其进行主题分析。结果：我们提出了三个密切相关的主题，即努力不失控、资源和环境挑战之间的平衡不断变化以及谈判的独立性和相互依存性。参与者将他们面临的困难解释为多配偶。他们的主要目标是保持自主权、代理权和积极的身份认同。他们采用了个人的、创造性的策略来实现这些目标。结论：患有慢性病的老年人优先考虑自主性和能动性，以保持积极的身份认同。意义：支持患有慢性病的老年人的干预措施应以他们的优先事项为中心，并加强他们的创造力。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Scandinavian Journal of Occupational Therapy REHABILITATION-

CiteScore

3.40

自引率

15.80%

发文量

审稿时长

6-12 weeks

期刊介绍： The Scandinavian Journal of Occupational Therapy is an internationally well-recognized journal that aims to provide a forum for occupational therapy research worldwide and especially the Nordic countries. Scandinavian Journal of Occupational Therapy welcomes: theoretical frameworks, original research reports emanating from quantitative, qualitative and mixed methods studies, literature reviews, case studies, presentation and evaluation of instruments, evaluation of interventions, learning and teaching in OT, letters to the editor.