{"title":"The Weariness of Hoping: Synchronizing Affect While Awaiting Organ Transplantation for Cystic Fibrosis in Germany.","authors":"Stefan Reinsch, Jörg Niewöhner, Carsten Schwarz","doi":"10.1080/01459740.2023.2240946","DOIUrl":null,"url":null,"abstract":"<p><p>We describe the challenges in synchronizing affect during the lengthy lead-up to organ transplantation. Our analysis draws on ethnographic fieldwork in Eastern Germany among medical staff caring for patients with cystic fibrosis, a progressive, genetic illness. Patient and practitioners must together endure an uncertain wait for a donor organ, while simultaneously living and working toward living as well as possible. The organizing affective principle in this setting is hoping, which is a socio-material practice that must be continuously and interactively re-produced. Too little or too much hoping must be managed by adjusting affective intensities. A failure to strike this balance can lead to what we designate as the <i>weariness of hoping</i>.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"42 6","pages":"593-606"},"PeriodicalIF":1.5000,"publicationDate":"2023-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medical Anthropology","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1080/01459740.2023.2240946","RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
We describe the challenges in synchronizing affect during the lengthy lead-up to organ transplantation. Our analysis draws on ethnographic fieldwork in Eastern Germany among medical staff caring for patients with cystic fibrosis, a progressive, genetic illness. Patient and practitioners must together endure an uncertain wait for a donor organ, while simultaneously living and working toward living as well as possible. The organizing affective principle in this setting is hoping, which is a socio-material practice that must be continuously and interactively re-produced. Too little or too much hoping must be managed by adjusting affective intensities. A failure to strike this balance can lead to what we designate as the weariness of hoping.
期刊介绍:
Medical Anthropology provides a global forum for scholarly articles on the social patterns of ill-health and disease transmission, and experiences of and knowledge about health, illness and wellbeing. These include the nature, organization and movement of peoples, technologies and treatments, and how inequalities pattern access to these. Articles published in the journal showcase the theoretical sophistication, methodological soundness and ethnographic richness of contemporary medical anthropology. Through the publication of empirical articles and editorials, we encourage our authors and readers to engage critically with the key debates of our time. Medical Anthropology invites manuscripts on a wide range of topics, reflecting the diversity and the expanding interests and concerns of researchers in the field.