Madeline King, Allie Peckham, Husayn Marani, Monika Roerig, Seles Yung, Kimberlyn McGrail, Yuchi Young, James Shaw, Greg Marchildon
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Gaps in the System: Supporting People Living with Dementia.
Persons living with dementia and their caregivers often face challenges in accessing support for their complex needs. This study aims to understand how program administrators, people living with dementia, unpaid caregivers, and decision-makers perceive specific dementia care programs and whether they are adequately meeting the needs of individuals living with dementia. Forty semi-structured interviews were conducted between 2018 and 2020 in five North American jurisdictions. Three main gaps were identified (1) disconnected system infrastructure, (2) lack of comprehensive services to meet diverse needs, and (3) inconsistent understandings of dementia. Despite having programs in place, there remain significant limitations in systems that could be addressed to adequately meet the needs of individuals living with dementia and their caregivers.
期刊介绍:
The Journal of Aging & Social Policy offers a platform for insightful contributions from an international and interdisciplinary group of policy analysts and scholars. It provides an in-depth examination and analysis of critical phenomena that impact aging and the development and implementation of programs for the elderly from a global perspective, with a broad scope that encompasses not only the United States but also regions including Europe, the Middle East, Australia, Latin America, Asia, and the Asia-Pacific rim.
The journal regularly addresses a wide array of issues such as long-term services and supports, home- and community-based care, nursing-home care, assisted living, long-term care financing, financial security, employment and training, public and private pension coverage, housing, transportation, health care access, financing, and quality, family dynamics, and retirement. These topics are of significant importance to the field of aging and social policy, reflecting the journal's commitment to presenting a comprehensive view of the challenges and solutions related to aging populations around the world.