患者、患者、受害者、伤者或脊髓颈病患者:让我们来决定我们的身份。

Timothy F Boerger, Benjamin M Davies, Iwan Sadler, Ellen Sarewitz, Mark R N Kotter
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引用次数: 12

摘要

在生物医学期刊中,以人为本的语言被认为比以身份为本的语言更可取。然而,并非所有患有某些医学诊断(如耳聋)的人都喜欢以人为本的语言。此外,在一些神经学诊断的文献中,坚持以人为本的语言是很差的。因此,最合适的做法是与有特定诊断的人就其首选标识符进行磋商。在这里,我们描述了由研究目标和退行性脊髓型颈椎病指导委员会成员(RECODE-DCM, recode-dcm.com)共同数据要素进行的共识过程,以确定我们的首选标识符。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patient, sufferer, victim, casualty or person with cervical myelopathy: let us decide our identifier.

Among biomedical journals, person-first language is considered preferable to identity person-first language. However, not all populations of people with certain medical diagnoses, such as deafness, prefer person-first language. Moreover, adherence to person-first language is poor among the literature on some neurological diagnoses. Therefore, it is most appropriate to consult with people with a given diagnosis regarding their preferred identifier. Here, we describe a consensus process undertaken by the REsearch objectives and COmmon Data Elements for Degenerative Cervical Myelopathy (RECODE-DCM, recode-dcm.com) steering committee members with cervical myelopathy to determine our preferred identifier.

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