回应 "加拿大人需要改善罕见病药物的获取，而不是更多的拒绝"。

Q3 Medicine

Healthcare Papers Pub Date : 2023-04-01 DOI:10.12927/hcpap.2023.27111

Sandra Sirrs, Bashir Jiwani, Eric Lun, Bob Nakagawa, Anne McFarlane

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引用次数: 0

摘要

Rawson 和 Adams (2023) 的评论与我们的文章（Sirrs 等人，2023a, 2023b）不符。我们同意，患者的观点至关重要，"罕见病患者有权获得医疗保健服务，他们的巨大需求尚未得到满足......"（第 7 页）。然而，我们对 Rawson 和 Adams（2023 年）的论点提出质疑，他们认为将加拿大的药价保持在高于大多数其他国家的水平就能解决罕见病的治疗问题。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Response to "Canadians Need Improved Access to Drugs for Rare Diseases, Not More Denial".

The comments provided by Rawson and Adams (2023) miss the mark of our articles (Sirrs et al. 2023a, 2023b). We agree that the patient perspective is critical and that patients with "rare diseases have a right to healthcare and have huge unmet needs …" (p. 7). However, we challenge Rawson and Adams' (2023) thesis that keeping drug prices higher in Canada than in most other countries would solve the problem of access to therapies for rare diseases that have no available treatment.

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来源期刊

Healthcare Papers Medicine-Health Policy

CiteScore

2.50

自引率

0.00%

发文量

期刊介绍： Integrating community-based health and social care has grabbed international attention as a way of addressing the needs of aging populations while contributing to health systems" sustainability. However, integrating initiatives in different jurisdictions work (or do not work) within very various.