亨廷顿舞蹈病的预先护理计划。

IF 2.1 Q3 NEUROSCIENCES
Mena Farag, Desiree M Salanio, Cara Hearst, Daniela Rae, Sarah J Tabrizi
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引用次数: 0

摘要

预先护理计划(ACP)是一种有用的工具,它使成年患者、护理提供者和替代决策者受益,它为患者提供机会,让他们在保留决策能力的情况下,考虑、表达和形式化他们对未来医疗护理决策的信念、偏好和愿望。考虑到确定亨廷顿舞蹈病晚期决策能力的潜在挑战,尽早和及时地考虑ACP讨论对亨廷顿舞蹈病(HD)至关重要。ACP有助于增强和扩大患者的自主权,为临床医生和替代决策者提供保证,确保管理与患者表达的愿望相一致。定期跟进对于建立决策和愿望的一致性至关重要。我们概述了在我们的HD服务中集成的专用ACP诊所的框架,以强调以患者为中心和量身定制的护理计划的重要性,以满足患者表达的目标,偏好和价值观。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Advance Care Planning in Huntington's Disease.

Advance care planning (ACP) is a useful tool that benefits adult patients, care providers, and surrogate decision makers, through providing opportunities for patients to consider, express, and formalize their beliefs, preferences, and wishes pertaining to decisions regarding future medical care at a time when they retain decision-making capacity. Early and timely consideration of ACP discussions is paramount in Huntington's disease (HD) given the potential challenges in ascertaining decision-making capacity in the advanced stages of the disease. ACP helps to empower and extend patient autonomy, providing clinicians and surrogate decision makers with reassurance that management is consistent with a patient's expressed wishes. Regular follow up is vital to establish consistency of decisions and wishes. We outline the framework of the dedicated ACP clinic integrated within our HD service to highlight the importance of a patient-centred and tailored care plan that fulfils the patient's expressed goals, preferences, and values.

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CiteScore
4.80
自引率
9.70%
发文量
60
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