“我有时很难看到她的挣扎”:母亲对与阅读障碍相关的学校挣扎的看法,以及母亲和儿童福祉的内在联系

IF 1.9 3区 教育学 Q1 EDUCATION, SPECIAL
Dyslexia Pub Date : 2023-02-08 DOI:10.1002/dys.1733
Adrienne Wilmot, Hannah Pizzey, Suze Leitão, Penelope Hasking, Mark Boyes
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引用次数: 0

摘要

患有阅读障碍儿童的父母可能面临更高的养育压力和心理健康问题。我们的目的是从父母的角度来探索在澳大利亚患有阅读障碍的孩子成长过程中的情感体验。在这样做的过程中,我们也通过父母的生活经历了解了他们自己的心理健康和支持需求。对17名儿童(9-14岁)的母亲进行访谈;使用Braun和Clarke的反思性主题分析方法对16例被诊断为阅读障碍的儿童进行分析。为了实现我们的目标,我们制定了五个主题:主题1:荒野岁月:诊断前的生活;2:“我有时会挣扎着看到她的挣扎”;3.在学校的挣扎:为我们的孩子争取权益,管理痛苦;4. “这是一份全职工作”,而且“很辛苦”;5 .照顾照顾者:社会支持和应对策略。结论:我们的分析表明,患有阅读障碍儿童的母亲可能有更高的心理健康风险。具体来说,长期的担忧和压力,继发性的痛苦,父母自我效能的挑战,缺乏支持和理解(感觉孤立)被强调为可能的风险因素。母亲们将社区层面(如学校联系)和个人层面(如“接受”)的应对策略描述为保护性策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“I struggle at times to see her struggle”: Mothers' perspectives on dyslexia-related school struggles and the inter-connected nature of mother and child well-being

Introduction

Parents of children with dyslexia may be at elevated risk for parenting stress and mental health concerns. Our aim was to explore the emotional experience of growing up with dyslexia in Australia from parents' perspectives. In so doing, we also developed an understanding of parents' own mental health and support needs informed by their lived experience.

Methodology

Seventeen interviews with mothers of children (9–14 years; 16 with a diagnosis of dyslexia) were analysed using Braun and Clarke's reflexive thematic analysis approach.

Analysis

Five themes were developed to address our aim: Theme 1: Years in the wilderness: Life before diagnosis; 2: “I struggle at times to see her struggle”; 3. School struggles: Advocating for our children and managing distress; 4. “It's a full-time job” and a “long slog”; 5: Care for the carer: Social support and coping strategies.

Conclusions

Our analysis suggests that mothers of children with dyslexia may be at elevated risk for mental health concerns. Specifically, chronic worry and stress, secondary distress, challenges to parenting self-efficacy, and lack of support and understanding (feeling isolated) were highlighted as plausible risk factors. Mothers described coping strategies at the community level (e.g., school connectedness) and at the individual level (e.g., “acceptance”) as protective.

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来源期刊
Dyslexia
Dyslexia Multiple-
CiteScore
3.90
自引率
9.10%
发文量
27
期刊介绍: DYSLEXIA provides reviews and reports of research, assessment and intervention practice. In many fields of enquiry theoretical advances often occur in response to practical needs; and a central aim of the journal is to bring together researchers and practitioners in the field of dyslexia, so that each can learn from the other. Interesting developments, both theoretical and practical, are being reported in many different countries: DYSLEXIA is a forum in which a knowledge of these developments can be shared by readers in all parts of the world. The scope of the journal includes relevant aspects of Cognitive, Educational, Developmental and Clinical Psychology Child and Adult Special Education and Remedial Education Therapy and Counselling Neuroscience, Psychiatry and General Medicine The scope of the journal includes relevant aspects of: - Cognitive, Educational, Developmental and Clinical Psychology - Child and Adult Special Education and Remedial Education - Therapy and Counselling - Neuroscience, Psychiatry and General Medicine
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