Saba Ahmed, Rosario Yslado Méndez, Shaheryar Naveed, Shoaib Akhter, Iqra Mushtaque, Mareen A Malik, Waqar Ahmad, Roger Norabuena Figueroa, Ammar Younas
{"title":"评估与肝炎相关的知识，态度和实践的生活质量与内化耻辱在巴基斯坦乙型肝炎阳性患者中的调节作用。","authors":"Saba Ahmed, Rosario Yslado Méndez, Shaheryar Naveed, Shoaib Akhter, Iqra Mushtaque, Mareen A Malik, Waqar Ahmad, Roger Norabuena Figueroa, Ammar Younas","doi":"10.1080/21642850.2023.2192782","DOIUrl":null,"url":null,"abstract":"<p><strong>Aim: </strong>This study aimed to assess the Pakistani hepatitis B patients' knowledge, attitudes, and practices towards hepatitis management and the impact of self-management on the quality of life of hepatitis B patients as well as the moderating role of stigmatization.</p><p><strong>Methods: </strong>A cross-sectional study design was used, and the data was collected from a total of 432 hepatitis B positive patients through a self-designed questionnaire. The studied subjects consisted of men (<i>n</i> = 205, 47%), women (<i>n</i> = 165, 38%), and transgender (<i>n</i> = 62, 14%). The obtained data were statistically analyzed using SPSS software version 26.0 for Windows.</p><p><strong>Results: </strong>The mean age of the study participants was 48. Knowledge has a significant positive relationship with hepatitis self-management and quality of life, whereas knowledge has a negative relationship with stigmatization. Furthermore, multivariate analysis revealed that men were more knowledgeable about the disease than women and transgender people (6.14 ± 2.08 vs. 3.23 ± 1.61 vs. 1.03 ± 0.73, F = 8.2**, <i>p</i> = .000). On the scale of attitude and practice, significant gender differences were found. Women had more experience with hepatitis self-management than men or transgender (4.21 ± 13.0 vs. 2.17 ± 6.02 vs. 0.37 ± 0.31, F = 6.21**, <i>p</i> = .000). The regression analysis showed that self-management has a positive association with quality of life (B = 0.36, <i>p</i> = .001). The moderation analysis revealed that stigmatization negatively moderates the relationship between self-management and quality of life (B = -0.53, <i>p</i> = .001).</p><p><strong>Conclusion: </strong>Generally, patients had good knowledge about the disease and its self-management. However, a societal and community-level awareness campaign should be organized on the quality of life and stigmatization of people with chronic illness regarding their human rights, dignity, and physical, mental, and social well-being.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":null,"pages":null},"PeriodicalIF":2.4000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10064821/pdf/","citationCount":"1","resultStr":"{\"title\":\"Assessment of hepatitis-related knowledge, attitudes, and practices on quality of life with the moderating role of internalized stigma among hepatitis B-positive patients in Pakistan.\",\"authors\":\"Saba Ahmed, Rosario Yslado Méndez, Shaheryar Naveed, Shoaib Akhter, Iqra Mushtaque, Mareen A Malik, Waqar Ahmad, Roger Norabuena Figueroa, Ammar Younas\",\"doi\":\"10.1080/21642850.2023.2192782\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Aim: </strong>This study aimed to assess the Pakistani hepatitis B patients' knowledge, attitudes, and practices towards hepatitis management and the impact of self-management on the quality of life of hepatitis B patients as well as the moderating role of stigmatization.</p><p><strong>Methods: </strong>A cross-sectional study design was used, and the data was collected from a total of 432 hepatitis B positive patients through a self-designed questionnaire. The studied subjects consisted of men (<i>n</i> = 205, 47%), women (<i>n</i> = 165, 38%), and transgender (<i>n</i> = 62, 14%). The obtained data were statistically analyzed using SPSS software version 26.0 for Windows.</p><p><strong>Results: </strong>The mean age of the study participants was 48. Knowledge has a significant positive relationship with hepatitis self-management and quality of life, whereas knowledge has a negative relationship with stigmatization. Furthermore, multivariate analysis revealed that men were more knowledgeable about the disease than women and transgender people (6.14 ± 2.08 vs. 3.23 ± 1.61 vs. 1.03 ± 0.73, F = 8.2**, <i>p</i> = .000). On the scale of attitude and practice, significant gender differences were found. Women had more experience with hepatitis self-management than men or transgender (4.21 ± 13.0 vs. 2.17 ± 6.02 vs. 0.37 ± 0.31, F = 6.21**, <i>p</i> = .000). The regression analysis showed that self-management has a positive association with quality of life (B = 0.36, <i>p</i> = .001). The moderation analysis revealed that stigmatization negatively moderates the relationship between self-management and quality of life (B = -0.53, <i>p</i> = .001).</p><p><strong>Conclusion: </strong>Generally, patients had good knowledge about the disease and its self-management. However, a societal and community-level awareness campaign should be organized on the quality of life and stigmatization of people with chronic illness regarding their human rights, dignity, and physical, mental, and social well-being.</p>\",\"PeriodicalId\":12891,\"journal\":{\"name\":\"Health Psychology and Behavioral Medicine\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.4000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10064821/pdf/\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health Psychology and Behavioral Medicine\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1080/21642850.2023.2192782\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PSYCHOLOGY, CLINICAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Psychology and Behavioral Medicine","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1080/21642850.2023.2192782","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
引用次数: 1
摘要
目的:本研究旨在评估巴基斯坦乙型肝炎患者对肝炎管理的知识、态度和实践，以及自我管理对乙型肝炎患者生活质量的影响以及污名化的调节作用。方法:采用横断面研究设计，通过自行设计的问卷收集432例乙型肝炎阳性患者的资料。研究对象包括男性(n = 205, 47%)、女性(n = 165, 38%)和跨性别者(n = 62, 14%)。采用SPSS 26.0 for Windows软件对所得数据进行统计学分析。结果:研究参与者的平均年龄为48岁。知识与肝炎自我管理和生活质量有显著的正相关，而知识与污名化有负相关。多因素分析显示，男性对该病的认知程度高于女性和变性人(6.14±2.08 vs. 3.23±1.61 vs. 1.03±0.73,F = 8.2**， p = .000)。在态度和行为量表上，存在显著的性别差异。女性肝炎自我管理经验高于男性或跨性别者(4.21±13.0∶2.17±6.02∶0.37±0.31,F = 6.21**， p = 0.000)。回归分析显示，自我管理与生活质量呈正相关(B = 0.36, p = .001)。调节分析显示，污名化负向调节自我管理与生活质量之间的关系(B = -0.53, p = .001)。结论:患者对本病有较好的认识和自我管理。但是，应组织一场社会和社区一级的宣传运动，宣传生活质量和对慢性病患者的人权、尊严以及身心和社会福祉的污名化。
Assessment of hepatitis-related knowledge, attitudes, and practices on quality of life with the moderating role of internalized stigma among hepatitis B-positive patients in Pakistan.
Aim: This study aimed to assess the Pakistani hepatitis B patients' knowledge, attitudes, and practices towards hepatitis management and the impact of self-management on the quality of life of hepatitis B patients as well as the moderating role of stigmatization.
Methods: A cross-sectional study design was used, and the data was collected from a total of 432 hepatitis B positive patients through a self-designed questionnaire. The studied subjects consisted of men (n = 205, 47%), women (n = 165, 38%), and transgender (n = 62, 14%). The obtained data were statistically analyzed using SPSS software version 26.0 for Windows.
Results: The mean age of the study participants was 48. Knowledge has a significant positive relationship with hepatitis self-management and quality of life, whereas knowledge has a negative relationship with stigmatization. Furthermore, multivariate analysis revealed that men were more knowledgeable about the disease than women and transgender people (6.14 ± 2.08 vs. 3.23 ± 1.61 vs. 1.03 ± 0.73, F = 8.2**, p = .000). On the scale of attitude and practice, significant gender differences were found. Women had more experience with hepatitis self-management than men or transgender (4.21 ± 13.0 vs. 2.17 ± 6.02 vs. 0.37 ± 0.31, F = 6.21**, p = .000). The regression analysis showed that self-management has a positive association with quality of life (B = 0.36, p = .001). The moderation analysis revealed that stigmatization negatively moderates the relationship between self-management and quality of life (B = -0.53, p = .001).
Conclusion: Generally, patients had good knowledge about the disease and its self-management. However, a societal and community-level awareness campaign should be organized on the quality of life and stigmatization of people with chronic illness regarding their human rights, dignity, and physical, mental, and social well-being.
期刊介绍：
Health Psychology and Behavioral Medicine: an Open Access Journal (HPBM) publishes theoretical and empirical contributions on all aspects of research and practice into psychosocial, behavioral and biomedical aspects of health. HPBM publishes international, interdisciplinary research with diverse methodological approaches on: Assessment and diagnosis Narratives, experiences and discourses of health and illness Treatment processes and recovery Health cognitions and behaviors at population and individual levels Psychosocial an behavioral prevention interventions Psychosocial determinants and consequences of behavior Social and cultural contexts of health and illness, health disparities Health, illness and medicine Application of advanced information and communication technology.
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