澳大利亚的残疾研究:决定成为研究参与者和参与的经验。

IF 1.7 4区 哲学 Q2 ETHICS
Maddy Slattery, Carolyn Ehrlich, Michael Norwood, Delena Amsters, Gary Allen
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引用次数: 0

摘要

对于为什么残疾人选择参加残疾研究以及他们的经历是什么样的,人们知之甚少。了解这一点可能有助于研究人员和研究伦理委员会提高残疾人在以残疾、医疗保健和人类服务为重点的研究中的授权和道德参与。这项横断面混合方法研究探讨了一组澳大利亚成年残疾人参与研究的观点和经历。进行了在线调查(N = 29)和随访访谈(N = 15)。研究发现,决定参与研究是一个复杂的评估过程,包括对自己和他人的益处、研究相关性、价值、舒适度、便利性、安全性和风险。研究人员在培养信任方面的态度和行为,通过采取移情的方法进行残疾研究,似乎是参与者经验的一个重要方面。研究伦理委员会可能会从此类研究中出现的“微观伦理”时刻的知识中受益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Disability Research in Australia: Deciding to Be a Research Participant and the Experience of Participation.

Little is known about why people with disability choose to take part in disability research and what their experience is like. Knowledge of this may help researchers and research ethics committees improve the empowered and ethical participation of people with disability in disability, healthcare, and human service focussed research. This cross-sectional mixed-methods study explored the perspectives and experiences of a group of Australian adults with disability regarding their involvement in research. Online surveys (N = 29) and follow-up interviews (N = 15) were conducted. The study found the decision to participate was a complex appraisal of benefit to self and others, research relevance, value, comfort, convenience, safety and risk. The attitudes and behaviours of researchers in cultivating trust by adopting an empathic approach to the conduct of disability research appear to be an important aspect of participant experience. Research ethics committees may benefit from knowledge of the 'microethical' moments that occur in such research.

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来源期刊
CiteScore
3.50
自引率
7.70%
发文量
30
审稿时长
>12 weeks
期刊介绍: The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.
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