Marguerita Lightfoot, Renisha Campbell, Gertrude Khumalo-Sakutukwa, Alfred Chingono, Shana Hughes, Kelly Taylor
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Barriers to disclosing included the children being \"too young\" and lacking understanding of HIV as well as inability to maintain confidentiality around parents' status, 2) causing the child to worry, 3) being embarrassed, and 4) fearing that disclosure would prompt a child to treat a parent with disrespect. Motivators included 1) support of various kinds from their children, 2) educating their children around HIV risk, and 3) facilitating discussions about parental illness and death. Our findings suggest that understanding the barriers to disclosure is likely insufficient for supporting and promoting parental disclosure. 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引用次数: 0
摘要
向子女披露信息被认为是感染艾滋病毒(PLH)的父母面临的主要挑战之一。本研究的目的是在津巴布韦的一个艾滋病高发社区,从定性角度探讨父母披露信息的动机、障碍和过程。共有 28 名艾滋病毒感染者参加了三个焦点小组,其中包括已向子女公开艾滋病毒感染状况的艾滋病毒感染者(11 人)、未向子女公开艾滋病毒感染状况的艾滋病毒感染者(7 人),第三组包括已公开和未公开艾滋病毒感染状况的艾滋病毒感染者(10 人)。家长们采用了完全公开、部分公开和间接公开的方式。公开身份的障碍包括:1)孩子 "太小",对 HIV 缺乏了解,无法对父母的身份保密;2)让孩子担心;3)尴尬;4)担心公开身份会导致孩子不尊重父母。激励因素包括:1)来自子女的各种支持;2)对子女进行有关 HIV 风险的教育;3)促进有关父母疾病和死亡的讨论。我们的研究结果表明,了解披露的障碍可能不足以支持和促进父母披露。要促进和支持父母披露信息,还需要披露信息的动机、对披露过程的支持以及与文化相关的干预措施。
Motivators and Barriers for Parents to Disclose their HIV Status to Children.
Disclosure to children has been identified as one of the main challenges for parents living with HIV (PLH). The aim of this study was to qualitatively explore motivators, barriers, and the process of parental disclosure in a Zimbabwean community with high HIV prevalence. A total of 28 PLH participated in three focus groups comprising PLH who had disclosed their HIV status to their children (n = 11), PLH who had not disclosed to their children (n = 7), and the third group contained PLH who both had and had not disclosed their status (n = 10). Full, partial and indirect disclosure approaches were used by parents. Barriers to disclosing included the children being "too young" and lacking understanding of HIV as well as inability to maintain confidentiality around parents' status, 2) causing the child to worry, 3) being embarrassed, and 4) fearing that disclosure would prompt a child to treat a parent with disrespect. Motivators included 1) support of various kinds from their children, 2) educating their children around HIV risk, and 3) facilitating discussions about parental illness and death. Our findings suggest that understanding the barriers to disclosure is likely insufficient for supporting and promoting parental disclosure. The motivation for disclosure, support for the disclosure process, and culturally relevant interventions are needed to promote and support parental disclosure.
期刊介绍:
Vulnerable Children and Youth Studies is an essential peer-reviewed journal analyzing psychological, sociological, health, gender, cultural, economic, and educational aspects of children and adolescents in developed and developing countries. This international publication forum provides a much-needed interdisciplinary focus on vulnerable children and youth at risk, specifically in relation to health and welfare issues, such as mental health, illness (including HIV/AIDS), disability, abuse, neglect, institutionalization, poverty, orphanhood, exploitation, war, famine, and disaster.