印度尼西亚偏远农村地区先天性风疹综合征(CRS)患儿的父母护理经验

Q2 Nursing
Petrus Kanisius Siga Tage, Herliana Monika Azi Djogo, Erna Febriyanti, Y. M. Letor, Maria Yoanita Bina, Maria Yasintha Goa Goa, Angela Muryanti Gatum
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引用次数: 0

摘要

背景:农村地区先天性风疹综合征(CRS)儿童的父母获得医疗保健和专业服务的机会有限、经济困难、社会孤立和污名化。对他们经历的研究是有限的。目的:本研究探讨印尼农村CRS儿童的父母照顾经验。方法:采用描述现象学方法,目的抽样收集收容所CRS儿童的父母,其他参与者采用滚雪球抽样。纳入标准包括照顾两岁以上CRS儿童的父母,能够表达他们的经历,并说印尼语。25位家长参加了一项深入的半结构化访谈。使用Colaizzi方法对数据进行分析。结果:本研究发现,在农村地区,照顾患病儿童的父母经历了影响其心理健康的改变生活的情况。此外,照顾生病的孩子也造成了家庭生活的情绪紊乱和紧张。其他挑战包括为她们的孩子获得适当治疗,特别是在偏远农村地区,以及难以获得保健服务。因此,适当的心理健康治疗和支持对照顾农村患病儿童的父母至关重要。结论:本研究描述了父母照顾CRS儿童的复杂经历,如难以接受孩子的病情和对孩子的情况感到负担。需要进一步的研究来理解文化的影响,扩大研究范围。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents’ Experiences of Caring for Children with Congenital Rubella Syndrome (CRS) in Remote and Rural Areas of Indonesia
Background: Parents of children with Congenital Rubella Syndrome (CRS) in rural areas face limited access to medical care and specialised services, financial difficulties, social isolation, and stigma. Research on their experiences is limited.Purpose: This study explores parents’ experiences of caring for their children with CRS in rural areas of Indonesia.Methods: The research used a descriptive phenomenological approach, purposive sampling to collect parents of children with CRS from the shelter, and snowball sampling for other participants. Inclusion criteria included parents who cared for CRS children over than two years old, could express their experiences, and spoke Indonesian. Twenty-five parents participated in an in-depth semi-structured interview. The data were analysed using the Colaizzi method.Results: This research found that parents caring for sick children in rural areas experienced life-altering situations that affected their mental health. In addition, caring for sick children also caused emotional disturbances and tension in family life. Other challenges included getting proper treatment for their child, especially in remote rural areas, and difficulty to reach health services. Therefore, proper mental health treatment and support were essential for parents who cared for sick children in rural areas.Conclusion: This study describes complexities of parents’ experiences of caring for children with CRS, such as difficulty to accept the child's condition and feeling burdened by their child’s case. Further studies are needed to understand cultural influences and expand the study area.
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来源期刊
Nurse Media Journal of Nursing
Nurse Media Journal of Nursing Earth and Planetary Sciences-Earth and Planetary Sciences (all)
CiteScore
1.50
自引率
0.00%
发文量
27
审稿时长
16 weeks
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