参与和可访问的数字失语症治疗的设计创新:iReadMore应用程序协同设计过程的框架分析

JMIR neurotechnology Pub Date : 2022-10-18 DOI:10.2196/39855
T. Langford, Victoria Fleming, E. Upton, Catherine Doogan, A. Leff, D. Romano
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引用次数: 0

摘要

iReadMore是一种针对由脑损伤或神经变性引起的获得性阅读障碍(称为失读症)患者的数字疗法。一项II期临床试验证明了数字治疗研究原型在提高中风后失语症(获得性语言障碍)和失读症患者的阅读速度和准确性方面的有效性。然而,它也强调了在家中提供自我管理疗法的复杂性和障碍。因此,为了将积极的研究成果转化为现实世界的效益,iReadMore需要后续的设计创新。在这里,我们从共同设计过程以及方法论提出定性的发现。我们的目标是在重新设计数字治疗原型时提出一种包容性共同设计的方法,重点关注可访问性和用户参与度的元素。我们使用框架分析来探索共同设计过程中交流和互动的主题。本研究包括2个阶段。在第一阶段,与中风后失语症患者(n=22)及其护理人员(n=3)进行5次面对面的共同设计会议,在第二阶段,与失语症患者(n=20)及其护理人员(n=5)进行远程一对一的beta测试会议,以测试和完善最终设计。除了参与者的书面笔记和图纸外,数据收集还包括共同设计会议的视频记录。框架分析用于确定与数字失语症治疗设计相关的数据中的主题。通过对共同设计过程中产生的数据进行定性框架分析,本文提出并讨论了数字失语症治疗的7个关键考虑领域。产生的主题是代理,直觉设计,动机,个人轨迹,可识别和相关的内容,社交和分享,以及扩大参与。这项研究使iReadMore应用程序能够以一种易于访问和吸引人的形式部署。协同设计是一种有价值的创新策略,它超越了传统的治疗设计,在以用户为中心的设计中利用基于技术的治疗方法可以实现的目标。共同设计的iReadMore应用程序已公开发布,用于获得性阅读障碍的康复。本文详细介绍了iReadMore治疗应用程序的共同设计过程,并提供了如何与失语症患者进行包容性共同设计的方法。框架分析的发现为数字疗法的设计考虑提供了见解,这对失语症患者很重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Design Innovation for Engaging and Accessible Digital Aphasia Therapies: Framework Analysis of the iReadMore App Co-Design Process
iReadMore is a digital therapy for people with acquired reading impairments (known as alexia) caused by brain injury or neurodegeneration. A phase II clinical trial demonstrated the efficacy of the digital therapy research prototype for improving reading speed and accuracy in people with poststroke aphasia (acquired language impairment) and alexia. However, it also highlighted the complexities and barriers to delivering self-managed therapies at home. Therefore, in order to translate the positive study results into real-world benefits, iReadMore required subsequent design innovation. Here, we present qualitative findings from the co-design process as well as the methodology. We aimed to present a methodology for inclusive co-design in the redesign of a digital therapy prototype, focusing on elements of accessibility and user engagement. We used framework analysis to explore the themes of the communications and interactions from the co-design process. This study included 2 stages. In the first stage, 5 in-person co-design sessions were held with participants living with poststroke aphasia (n=22) and their carers (n=3), and in the second stage, remote one-to-one beta-testing sessions were held with participants with aphasia (n=20) and their carers (n=5) to test and refine the final design. Data collection included video recordings of the co-design sessions in addition to participants’ written notes and drawings. Framework analysis was used to identify themes within the data relevant to the design of digital aphasia therapies in general. From a qualitative framework analysis of the data generated in the co-design process, 7 key areas of consideration for digital aphasia therapies have been proposed and discussed in context. The themes generated were agency, intuitive design, motivation, personal trajectory, recognizable and relatable content, social and sharing, and widening participation. This study enabled the deployment of the iReadMore app in an accessible and engaging format. Co-design is a valuable strategy for innovating beyond traditional therapy designs to utilize what is achievable with technology-based therapies in user-centered design. The co-designed iReadMore app has been publicly released for use in the rehabilitation of acquired reading impairments. This paper details the co-design process for the iReadMore therapy app and provides a methodology for how inclusive co-design can be conducted with people with aphasia. The findings of the framework analysis offer insights into design considerations for digital therapies that are important to people living with aphasia.
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