慢性疾病儿童的生活质量和旷课率

N. Emerson, Brian J Distelberg, Holly E. R. Morrell, Jackie Williams-Reade, Daniel Tapanes, S. Montgomery
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引用次数: 55

摘要

目的:患有慢性疾病(CI)的儿童和青少年往往表现出身体和社会功能的减弱,这导致了上学问题。我们调查了社会和身体功能在减少参加“掌握每个新方向”(MEND)的儿童缺勤方面的作用,这是一项针对CI青少年的基于家庭的社会心理干预。方法:48名儿童和青少年(CI 70.8%为女性,M年龄= 14.922,SD = 2.143)及其父母在干预前和干预后完成了与健康相关的生活质量(HRQOL)测量。采用多重中介,我们检验了父母和孩子评价的身体和社会HRQOL是否介导了MEND前后上学出勤率的关系。在不支持中介模型的情况下,我们研究了HRQOL是否调节了干预前后缺课天数之间的关系。结果:身体和社会功能都没有调节或调节干预前后缺课日之间的关系。相反,较高的父母评价的身体功能直接预示着缺课天数的减少,而较低的父母评价的社会和儿童评价的身体功能预示着缺课天数的增加。结论:父母感知的HRQOL可能直接影响与健康相关的行为,如出勤率。未来的研究应该确定父母评定的生活质量是否能长期维持,以及这些是否会继续影响功能健康的标志。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Quality of Life and School Absenteeism in Children With Chronic Illness
Objective: Children and adolescents with a chronic illness (CI) tend to demonstrate diminished physical and social functioning, which contribute to school attendance issues. We investigated the role of social and physical functioning in reducing school absenteeism in children participating in Mastering Each New Direction (MEND), a family-based psychosocial intervention for youths with CI. Methods: Forty-eight children and adolescents with a CI (70.8% female, M age = 14.922, SD = 2.143) and their parent(s) completed a health-related quality of life (HRQOL) measure pre- and postintervention. Using multiple mediation, we examined whether parent- and child-rated physical and social HRQOL mediated the relationship between school attendance before and after MEND. Once the mediational model was not supported, we investigated whether HRQOL moderated the relationship between missed school days pre- and postintervention. Results: Neither physical nor social functioning mediated or moderated the relationship between missed school days pre- and postintervention. Instead, higher parent-rated physical functioning directly predicted decreased number of missed school days, while lower parent-rated social and child-rated physical functioning predicted increased missed school days. Conclusions: Parent-perceived HRQOL may have a direct effect on health-related behaviors such as school attendance. Future research should determine whether gains in parent-rated QOL are maintained in the long term and whether these continue to impact markers of functional well-being.
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