Alisson Pugliesi, Zoraida Sachetto, Marcelo de Medeiros Pinheiro, Gecilmara Salviato Pileggi, Gustavo Sarot Pereira da Cunha, Faissal Nemer Hajar, Maria Luiza Marques Negrisolli Cunha, Licia Maria Henrique da Mota, Claudia Diniz Lopes Marques, Adriana Maria Kakehasi, Wanda Heloísa Rodrigues Ferreira, Nafice Costa Araújo, Ana Paula Monteiro Gomides Reis, Rejane Maria Rodrigues de Abreu Vieira, Gilda Aparecida Ferreira, Adriana Danowski, Viviane Angelina de Souza, Danielle Christinne Soares Egypto de Brito, Eduardo Dos Santos Paiva, José Roberto Provenza, Valderílio Feijó Azevedo
{"title":"巴西免疫相关风湿病患者如何面对 COVID-19 大流行的开始？COnVIDa 研究结果。","authors":"Alisson Pugliesi, Zoraida Sachetto, Marcelo de Medeiros Pinheiro, Gecilmara Salviato Pileggi, Gustavo Sarot Pereira da Cunha, Faissal Nemer Hajar, Maria Luiza Marques Negrisolli Cunha, Licia Maria Henrique da Mota, Claudia Diniz Lopes Marques, Adriana Maria Kakehasi, Wanda Heloísa Rodrigues Ferreira, Nafice Costa Araújo, Ana Paula Monteiro Gomides Reis, Rejane Maria Rodrigues de Abreu Vieira, Gilda Aparecida Ferreira, Adriana Danowski, Viviane Angelina de Souza, Danielle Christinne Soares Egypto de Brito, Eduardo Dos Santos Paiva, José Roberto Provenza, Valderílio Feijó Azevedo","doi":"10.1097/RHU.0000000000001882","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The coronavirus disease 2019 (COVID-19) pandemic has brought additional burden to patients living with immune-mediated rheumatic diseases (IMRDs), especially at the beginning of 2020, for which information for this population is lacking.</p><p><strong>Methods: </strong>COnVIDa is a cross-sectional study on patients with IMRD from all regions of Brazil who were invited to answer a specific and customized Web questionnaire about how they were facing the COVID-19 pandemic, especially focusing on health care access, use of medications, and patient-reported outcomes related to IMRD activity. The questionnaire was applied from June 1 to 30, 2020.</p><p><strong>Results: </strong>In total, 1722 of 2576 patients who answered the Web questionnaire were included in the final analysis. Participants were most frequently women, 56% were between 31 and 50 years old, and most (55%) has private health insurance. The most commonly reported IMRD was rheumatoid arthritis (39%), followed by systemic lupus erythematosus (28%). During the study period, 30.7% did not have access to rheumatology consultations, and 17.6% stopped chronic medications. Telemedicine was reported in 44.8% of patients.</p><p><strong>Conclusion: </strong>COnVIDa demonstrated a negative impact on health care access and treatment maintenance of patients living with IMRD during the COVID-19 pandemic. However, it also presented an uptake of telemedicine strategies. Data presented in this study may assist future coping policies.</p>","PeriodicalId":50838,"journal":{"name":"Agricultural History","volume":"1 1","pages":"e29-e33"},"PeriodicalIF":0.4000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"How Did Patients Living With Immune-Mediated Rheumatic Diseases Face the Beginning of the COVID-19 Pandemic in Brazil? Results of the COnVIDa Study.\",\"authors\":\"Alisson Pugliesi, Zoraida Sachetto, Marcelo de Medeiros Pinheiro, Gecilmara Salviato Pileggi, Gustavo Sarot Pereira da Cunha, Faissal Nemer Hajar, Maria Luiza Marques Negrisolli Cunha, Licia Maria Henrique da Mota, Claudia Diniz Lopes Marques, Adriana Maria Kakehasi, Wanda Heloísa Rodrigues Ferreira, Nafice Costa Araújo, Ana Paula Monteiro Gomides Reis, Rejane Maria Rodrigues de Abreu Vieira, Gilda Aparecida Ferreira, Adriana Danowski, Viviane Angelina de Souza, Danielle Christinne Soares Egypto de Brito, Eduardo Dos Santos Paiva, José Roberto Provenza, Valderílio Feijó Azevedo\",\"doi\":\"10.1097/RHU.0000000000001882\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The coronavirus disease 2019 (COVID-19) pandemic has brought additional burden to patients living with immune-mediated rheumatic diseases (IMRDs), especially at the beginning of 2020, for which information for this population is lacking.</p><p><strong>Methods: </strong>COnVIDa is a cross-sectional study on patients with IMRD from all regions of Brazil who were invited to answer a specific and customized Web questionnaire about how they were facing the COVID-19 pandemic, especially focusing on health care access, use of medications, and patient-reported outcomes related to IMRD activity. The questionnaire was applied from June 1 to 30, 2020.</p><p><strong>Results: </strong>In total, 1722 of 2576 patients who answered the Web questionnaire were included in the final analysis. Participants were most frequently women, 56% were between 31 and 50 years old, and most (55%) has private health insurance. The most commonly reported IMRD was rheumatoid arthritis (39%), followed by systemic lupus erythematosus (28%). During the study period, 30.7% did not have access to rheumatology consultations, and 17.6% stopped chronic medications. Telemedicine was reported in 44.8% of patients.</p><p><strong>Conclusion: </strong>COnVIDa demonstrated a negative impact on health care access and treatment maintenance of patients living with IMRD during the COVID-19 pandemic. However, it also presented an uptake of telemedicine strategies. Data presented in this study may assist future coping policies.</p>\",\"PeriodicalId\":50838,\"journal\":{\"name\":\"Agricultural History\",\"volume\":\"1 1\",\"pages\":\"e29-e33\"},\"PeriodicalIF\":0.4000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Agricultural History\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1097/RHU.0000000000001882\",\"RegionNum\":3,\"RegionCategory\":\"哲学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2022/6/14 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"HISTORY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Agricultural History","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/RHU.0000000000001882","RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/6/14 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"HISTORY","Score":null,"Total":0}
How Did Patients Living With Immune-Mediated Rheumatic Diseases Face the Beginning of the COVID-19 Pandemic in Brazil? Results of the COnVIDa Study.
Background: The coronavirus disease 2019 (COVID-19) pandemic has brought additional burden to patients living with immune-mediated rheumatic diseases (IMRDs), especially at the beginning of 2020, for which information for this population is lacking.
Methods: COnVIDa is a cross-sectional study on patients with IMRD from all regions of Brazil who were invited to answer a specific and customized Web questionnaire about how they were facing the COVID-19 pandemic, especially focusing on health care access, use of medications, and patient-reported outcomes related to IMRD activity. The questionnaire was applied from June 1 to 30, 2020.
Results: In total, 1722 of 2576 patients who answered the Web questionnaire were included in the final analysis. Participants were most frequently women, 56% were between 31 and 50 years old, and most (55%) has private health insurance. The most commonly reported IMRD was rheumatoid arthritis (39%), followed by systemic lupus erythematosus (28%). During the study period, 30.7% did not have access to rheumatology consultations, and 17.6% stopped chronic medications. Telemedicine was reported in 44.8% of patients.
Conclusion: COnVIDa demonstrated a negative impact on health care access and treatment maintenance of patients living with IMRD during the COVID-19 pandemic. However, it also presented an uptake of telemedicine strategies. Data presented in this study may assist future coping policies.
期刊介绍：
Agricultural History is the journal of record in the field. As such, it publishes articles on all aspects of the history of agriculture and rural life with no geographical or temporal limits. The editors are particularly interested in articles that address a novel subject, demonstrate considerable primary and secondary research, display an original interpretation, and are of general interest to Society members and other Agricultural History readers.
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