数字健康在儿童到成人癫痫护理过渡中的概述

IF 0.2 Q4 PEDIATRICS
Ysabeau Bernard-Willis, E. Oliveira, S. Lakhan
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引用次数: 0

摘要

癫痫患儿通常有认知和行为功能障碍,这可能会阻碍他们成年后的社会职业福祉。患有癫痫的青少年在开始从以家庭为中心的儿科护理过渡到基本上自主的成人护理时,对健康问题有额外的担忧。如果这种转变没有适当的计划和资源,它可能导致医疗不信任,不遵守和恶化的生物心理社会健康作为一个成年人。近年来,数字健康解决方案的可用性有所增加,可用于护理和治疗团队的这种明显变化。数字卫生领域包括各种各样的技术,旨在解决患者、护理人员、医疗专业人员和卫生保健系统面临的挑战。这些技术包括移动健康产品和可穿戴设备(例如,癫痫监测和跟踪器,智能手机被动数据收集),数字疗法(例如,认知/行为健康管理;数字语音(语言治疗)、远程保健服务(例如,远程神经病学就诊)和卫生信息技术(例如,带有患者门户的电子医疗记录)。这样的数字健康解决方案可以使患者在儿童到成人护理过渡的脆弱时期实现最佳的大脑健康。需要进一步的研究来验证和衡量它们对临床结果、卫生经济学和生活质量的影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
An Overview of Digital Health in the Transition of Pediatric to Adult Epilepsy Care
Abstract Children with epilepsy often have impairments in cognitive and behavioral functioning which may hinder socio-occupational well-being as they reach adulthood. Adolescents with epilepsy have the added worry of health problems while starting the transition from family-centered pediatric care into largely autonomous adult care. If this transition is not appropriately planned and resourced, it may result in medical mistrust, nonadherence, and worsening biopsychosocial health as an adult. In recent years, there has been increased availability of digital health solutions that may be used during this stark change in care and treating teams. The digital health landscape includes a wide variety of technologies meant to address challenges faced by patients, caregivers, medical professionals, and health care systems. These technologies include mobile health products and wearable devices (e.g., seizure monitors and trackers, smartphone passive data collection), digital therapeutics (e.g., cognitive/behavioral health management; digital speech–language therapy), telehealth services (e.g., teleneurology visits), and health information technology (e.g., electronic medical records with patient portals). Such digital health solutions may empower patients in their journey toward optimal brain health during the vulnerable period of pediatric to adult care transition. Further research is needed to validate and measure their impact on clinical outcomes, health economics, and quality of life.
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来源期刊
自引率
0.00%
发文量
21
期刊介绍: The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.
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