H38控制亨廷顿舞蹈症患者的沟通困难

A. Nuzzi
{"title":"H38控制亨廷顿舞蹈症患者的沟通困难","authors":"A. Nuzzi","doi":"10.1136/jnnp-2018-EHDN.216","DOIUrl":null,"url":null,"abstract":"Motor speech disorder, linguistic and cognitive difficulties, and behavioral changes significantly affect communication ability in Huntington’s disease. This progressive decline in communicative effectiveness negatively impacts social interactions resulting in diminished quality of life. However, these difficulties may vary over time and from person to person, requiring different intervention strategies based especially on the daily communication needs of HD patients and their families. The aims of this presentation are to: 1) highlight the need of a centered-person assessment of communication using the World Health Organization’s International Classification of Functioning, Disability and Health (ICF) model; 2) overview the available speech therapy interventions in HD to support communicative abilities and participation in everyday life even in late stage. Particular attention will also be paid to the use of new technologies in Teletherapy and Augmentative and Alternative Communication (AAC).","PeriodicalId":16509,"journal":{"name":"Journal of Neurology, Neurosurgery & Psychiatry","volume":"4 1","pages":"A80 - A80"},"PeriodicalIF":0.0000,"publicationDate":"2018-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"H38 Managing communication difficulties in huntington’s disease\",\"authors\":\"A. Nuzzi\",\"doi\":\"10.1136/jnnp-2018-EHDN.216\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Motor speech disorder, linguistic and cognitive difficulties, and behavioral changes significantly affect communication ability in Huntington’s disease. This progressive decline in communicative effectiveness negatively impacts social interactions resulting in diminished quality of life. However, these difficulties may vary over time and from person to person, requiring different intervention strategies based especially on the daily communication needs of HD patients and their families. The aims of this presentation are to: 1) highlight the need of a centered-person assessment of communication using the World Health Organization’s International Classification of Functioning, Disability and Health (ICF) model; 2) overview the available speech therapy interventions in HD to support communicative abilities and participation in everyday life even in late stage. Particular attention will also be paid to the use of new technologies in Teletherapy and Augmentative and Alternative Communication (AAC).\",\"PeriodicalId\":16509,\"journal\":{\"name\":\"Journal of Neurology, Neurosurgery & Psychiatry\",\"volume\":\"4 1\",\"pages\":\"A80 - A80\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2018-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Neurology, Neurosurgery & Psychiatry\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1136/jnnp-2018-EHDN.216\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Neurology, Neurosurgery & Psychiatry","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1136/jnnp-2018-EHDN.216","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1

摘要

运动言语障碍、语言和认知困难以及行为改变显著影响亨廷顿病患者的沟通能力。这种沟通效率的逐渐下降对社会交往产生了负面影响,导致生活质量下降。然而,这些困难可能随着时间和人的不同而不同,需要不同的干预策略,特别是基于HD患者及其家人的日常沟通需求。本报告的目的是:1)强调需要使用世界卫生组织的国际功能、残疾和健康分类(ICF)模型对交流进行以人为中心的评估;2)概述HD患者可用的语言治疗干预措施,以支持晚期的沟通能力和日常生活的参与。还将特别注意在远程治疗和辅助和替代通信方面使用新技术。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
H38 Managing communication difficulties in huntington’s disease
Motor speech disorder, linguistic and cognitive difficulties, and behavioral changes significantly affect communication ability in Huntington’s disease. This progressive decline in communicative effectiveness negatively impacts social interactions resulting in diminished quality of life. However, these difficulties may vary over time and from person to person, requiring different intervention strategies based especially on the daily communication needs of HD patients and their families. The aims of this presentation are to: 1) highlight the need of a centered-person assessment of communication using the World Health Organization’s International Classification of Functioning, Disability and Health (ICF) model; 2) overview the available speech therapy interventions in HD to support communicative abilities and participation in everyday life even in late stage. Particular attention will also be paid to the use of new technologies in Teletherapy and Augmentative and Alternative Communication (AAC).
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信