临终关怀的新闻

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摘要

尽管慢性阻塞性肺病的5年死亡率为50%到60%,但在最近的一项研究中,83%的晚期慢性阻塞性肺病(COPD)患者从未与他们的医生讨论过临终计划。纽约史泰登岛大学的一组研究人员回顾了两年来入院的所有患者的肺功能测试结果。纳入的依据是1秒用力呼气量(FEV1)比预测少50%。吸烟者、哮喘或癌症患者以及年龄小于50岁的患者被排除在外。共有83名患者完成了这项研究。据首席研究员Michel Chalhoub医学博士称,四分之一(26%)的患者不仅不知道自己的诊断结果,而且不知道这意味着什么。“这些患者的死亡率高于一期肺癌患者,”查尔胡布博士说。“告诉病人‘你得了肺气肿’不是什么好消息;这是个坏消息。”研究中有整整83%的患者没有和医生讨论过临终问题,尽管78%的患者会欢迎这样的讨论。“我们与癌症患者和艾滋病患者讨论[生命末期]问题,但不与COPD患者讨论,”Chalhoub博士说。Chalhoub博士在10月举行的第69届美国胸科医师学会年会上发表了他的研究结果。“双方都有问题,”会议主持人、来自俄克拉何马州俄克拉何马市退伍军人事务医疗中心的医学博士罗伯特·麦卡弗里说。“很多人对医疗系统存在不信任,研究表明,医生并不经常发起讨论。我们可能需要再推一把。(资料来源:2003年10月27日的CHEST 2003幻灯片演示。)
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Hospice news
Despite the fact that the five-year mortality rate for COPD is 50 to 60 percent, in a recent study 83 percent of patients with advanced chronic obstructive pulmonary disease (COPD) had never discussed end-of-life plans with their physicians. A team of researchers at Staten Island University in New York reviewed the pulmonary function tests of all patients admitted to their hospital over a two-year period. Inclusion was based on a forced expiratory volume at 1 second (FEV1) that was 50 percent less than predicted. Smokers, patients with asthma or cancer, and patients younger than 50 were excluded. Eighty-three patients in all completed the study. According to lead researcher Michel Chalhoub, MD, one quarter (26 percent) of patients not only were unaware of their diagnosis but had no idea what it meant. “These patients have worse mortality than patients with stage 1 lung cancer,” Dr. Chalhoub said. “Telling a patient ‘you have emphysema’ is not good news; it’s bad news.” Fully 83 percent of patients in the study had not discussed end-of-life issues with their physicians, although 78 percent would have welcomed such a discussion. “We discuss [endof-life] issues with cancer patients and AIDS patients but not with COPD patients,” said Dr. Chalhoub. Dr. Chalhoub presented his results at the 69th Annual Conference of the American College of Chest Physicians in October (CHEST 2003). “There is a problem on both sides,” said session moderator Robert McCaffree, MD, from the Veterans Affairs Medical Center in Oklahoma City, Oklahoma. “There is a mistrust on the part of many populations for the medical system, and studies show that physicians don’t initiate the discussion often enough. We may need to push it a little bit.” (Source: CHEST 2003 slide presentation, October 27, 2003.)
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